A brief history of my mental illness.
LiveJournal used to be my platform of choice. Then Facebook happened. But much of my blogging on my mental illness has been here. If you're going to continue looking, then here's the place to be. Much of my posts over the past few years have been about my mental state.
I was always *that* kid, even from grade 1 - the one that stood out like a sore thumb, the one that had very few friends, the one that kept on seeing the school social worker, the one that kept acting up in class and on the playground. The joke remains that my best friend was the school principal, because I saw her several times a day.
An incident in grade 2 led to my being put through every psychological and psychiatric test imaginable for an 8-year-old. IQ tests, rounds of social workers, psychologists, and psychiatrists, and other things that I've pushed so deep down in my memories that I've intentionally forgotten them. The end result: "Shawn is a very bright kid, but he does not achieve his academic potential in school." This statement appeared countless times in countless reviews over the course of my elementary school years. To this day, I reject any compliments because of how much that statement has hurt. If I'm so bright, then why can't I achieve? If I'm such a smart kid/teenager/adult, then why does it continuously take me longer to absorb material and graduate from one stage to the next? It has been 13 years since I started my bachelor's degree, and in that time my friends have started post-doctorates. I started my nursing degree 7 years ago, and in that time some of the most disruptive, offensive, and cheating students finished in four years.
Much of my childhood is a blur. I have intentionally erased large swathes of my childhood memories, so as to not dwell on the ongoing pain I felt as a kid.
In grade 7, I was first given the diagnosis of ADD/ADHD. I was put on Ritalin. This experiment led to me bouncing off the walls, swearing at teachers and classmates, and generally being more of a nuisance than usual. Three weeks later, the principal turned to my parents and said, "Either he goes off Ritalin or he doesn't come back to school."
In grade 8, I was diagnosed with Obsessive-Compulsive disorder, and I started taking Prozac. I had a hard year. I don't even remember why, beyond that I was bullied by some of the other kids in my class.
In grade 9, I went to Yeshivat Or Chaim, a Bnai Akiva high school for boys in Toronto. This was the first year of my depression. There were med changes. Much of it is a blur now. I do remember that the school was unwilling to accommodate for my mental health situation and my learning disabilities. I was effectively kicked out because of it. This was the first time I felt truly rejected by the same Jewish community that had brought me up. In hindsight, it was the start of my religious downfall, something that continues to this day.
The next year I transferred to Thornhill Secondary School, where there happened to be the best learning disabilities program in Ontario. They helped me get through high school. But high school was not a cakewalk. The depression kept on getting worse. At age 16, I was going through more med changes. I spent copious amounts of time in bed, sleeping, unmotivated to do anything. Many times when I went to see my psychiatrist I spent our session sleeping. That summer, I gained 23 Kg (50 lbs), and my knees have never been the same since. I was suicidal. I can't even begin to count the number of times I had a knife against my wrist. I tried to drown myself. I constantly thought of jumping. Everything was distorted. I was always so angry, so upset at the world, building up conspiracy theories about how everyone was out to get me. I lashed out at my family all the time. I saw multiple different psychologists and psychiatrists. This continued for years.
At 18, I entered a psychiatric day program for youth - my first hospitalization. I lost a semester of school to the five months I spent there. Because of it, I did not graduate with my class. But good things came of it. The constant care meant that my psychiatrist was able to monitor every little bit of my med changes, carefully tweaking dosages and drugs until the right combination was found. There I received CBT (Cognitive Behavioural Therapy) for the first time in my life, and to this day I still use techniques I learned there. When I left, I was stable for the first time in my life.
This stability continued for a number of years, the whole time of which I did not stop treatment, neither medications nor sessions with my psychiatrist and psychologist. I finished high school. I went to York University for computer sciences for two years, figured out that I really hate computers, then moved to Israel. I met the woman that would become my wife. I learned one year of Biology at Hebrew University, then transferred to Nursing after Biology proved to be a bust. On February 17, 2009, we welcomed our twin daughters into the world.
Anyone who says that there is no such thing as post-partum depression in fathers is a liar.
Also shortly after the girls were born, I was diagnosed (in a wonderfully half-assed manner) with Celiac Disease. Needless to say, not being allowed to eat bread did not help my mental state. I lasted on the diet for 5 months until I convinced my gastroenterologist that for the greater good of my mental health, I cannot be on this diet.
But things kept getting worse. The depression got worse. The anxiety got worse. More med changes. More psychotherapy. And then, another medical crisis: At age 27, I had a heart attack. At that age, even with my family history, it shouldn't have happened. I survived it thanks to the medical team that treated me. The response I was given when I asked why it happened: Genetics and luck. But a week before the heart attack, I switched medications to Venlafaxine (Viepaxx), an anti-depressant that works on different receptors than most other anti-depressants. A year later, I read a study that said that Venlafaxine has been shown to have a link to heart attacks in young patients.
The honeymoon period of "I survived something that should have killed me" ended quickly. I got angry with God, swearing at God, cursing God out for letting me survive the heart attack only to make me suffer more. The depression kept on getting worse and worse. Everything was horrible for me. My brain was functioning considerably slower than usual, which, for someone like me who relies so heavily on cognitive functioning to feel good about myself, exacerbated the situation. I was tired all the time. I was hungry all the time. My sex drive dropped. I wanted to die. A year or so after the heart attack, I ended up in the ER of Kfar Shaul, one of Jerusalem's main psychiatric hospitals. They referred me to an outpatient hospitalization at Maon Yerushalayim.
I spent two and a half months at Maon Yerushalayim and went through a number of med changes. However, though the referral letter from the ER specifically said that I needed to be receiving CBT, I didn't. They simply didn't have those resources there. None of their psychologists or psychiatrists were trained in it. But at least I left there not wanting to kill myself.
I transferred to a private clinic, where the psychiatrist's theory was that much of my psychiatric problems could be solved if we dealt with the old diagnosis of ADD. This psychiatrist was so dogmatically faithful to his belief that he and his team didn't give a crap to see that the depression got worse instead of better. He milked me and my family of tens of thousands of shekels, letting me crash and burn in the process.
I changed psychiatrists. My new psychiatrist changed my meds again. But it was too little, too late. Purim 2013 I ended up back in the ER at Kfar Shaul, writhing in pain from depression and anxiety. I was hospitalized internally for two and a half months.
Three good things came of this hospitalization: I leveled out to the medications that I am still taking today, I was diagnosed with Borderline Personality Disorder, and I found a job entirely by accident, the same job I'm working at today as a councilor for a social club for people dealing with mental illness. The rest of the hospitalization was torturous. My psychiatrist had an anger problem that made my anger problem look tame, at one point screaming at a patient during a group session. The head psychiatrist of my ward called me, to my face, "a problem child that acts like a baby" - words that to this day are burned into my mind. I spent a night in the lockup ward, and I can't begin to explain the horrific conditions those patients endured.
I left Kfar Shaul feeling almost as broken as when I went in. It took me months to recover from the trauma.
But things got better. I started going to DBT - Dialectical Behavioural Therapy, which worldwide is known as the standard treatment for BPD for twenty years. (Unfortunately, because mental health care in Israel is still nominally stuck in the 1970s, DBT is not available through public healthcare, but must be paid for privately.) I went back to school, and I'm now two weeks away from finishing my final assignment. Up until a month ago, I was the most stable I'd been since I was 19. I'm stabilizing again. The meds are working, the therapy is working, and I'm working on staying stable.
Mental illness is a chronic condition, just like any other chronic condition. But it is unlike every other chronic condition because of the stigma attached to it. The classic example I give is that when I had my heart attack, the entire congregation at the synagogue in which I grew up prayed and recited Psalms for my recovery. This did not happen when I was hospitalized for depression. But stigma goes much deeper than that. Stigma marginalizes the mentally ill patient. Stigma marginalizes the importance of high-quality care for the mentally ill patient. We wouldn't accept this kind of neglect in any other field of medicine. We shouldn't accept it for psychiatry. By opening up and talking about mental illness, we start a dialogue that can shatter the stigma that has forced the mentally ill underground, something to be hidden and ignored. We can break the chain of underfunding, of abusive caregivers, of subhuman conditions in hospitals. We can make the mental health care system more approachable and more friendly to those that so desperately need its help. We can #BreaktheStigma.
I was always *that* kid, even from grade 1 - the one that stood out like a sore thumb, the one that had very few friends, the one that kept on seeing the school social worker, the one that kept acting up in class and on the playground. The joke remains that my best friend was the school principal, because I saw her several times a day.
An incident in grade 2 led to my being put through every psychological and psychiatric test imaginable for an 8-year-old. IQ tests, rounds of social workers, psychologists, and psychiatrists, and other things that I've pushed so deep down in my memories that I've intentionally forgotten them. The end result: "Shawn is a very bright kid, but he does not achieve his academic potential in school." This statement appeared countless times in countless reviews over the course of my elementary school years. To this day, I reject any compliments because of how much that statement has hurt. If I'm so bright, then why can't I achieve? If I'm such a smart kid/teenager/adult, then why does it continuously take me longer to absorb material and graduate from one stage to the next? It has been 13 years since I started my bachelor's degree, and in that time my friends have started post-doctorates. I started my nursing degree 7 years ago, and in that time some of the most disruptive, offensive, and cheating students finished in four years.
Much of my childhood is a blur. I have intentionally erased large swathes of my childhood memories, so as to not dwell on the ongoing pain I felt as a kid.
In grade 7, I was first given the diagnosis of ADD/ADHD. I was put on Ritalin. This experiment led to me bouncing off the walls, swearing at teachers and classmates, and generally being more of a nuisance than usual. Three weeks later, the principal turned to my parents and said, "Either he goes off Ritalin or he doesn't come back to school."
In grade 8, I was diagnosed with Obsessive-Compulsive disorder, and I started taking Prozac. I had a hard year. I don't even remember why, beyond that I was bullied by some of the other kids in my class.
In grade 9, I went to Yeshivat Or Chaim, a Bnai Akiva high school for boys in Toronto. This was the first year of my depression. There were med changes. Much of it is a blur now. I do remember that the school was unwilling to accommodate for my mental health situation and my learning disabilities. I was effectively kicked out because of it. This was the first time I felt truly rejected by the same Jewish community that had brought me up. In hindsight, it was the start of my religious downfall, something that continues to this day.
The next year I transferred to Thornhill Secondary School, where there happened to be the best learning disabilities program in Ontario. They helped me get through high school. But high school was not a cakewalk. The depression kept on getting worse. At age 16, I was going through more med changes. I spent copious amounts of time in bed, sleeping, unmotivated to do anything. Many times when I went to see my psychiatrist I spent our session sleeping. That summer, I gained 23 Kg (50 lbs), and my knees have never been the same since. I was suicidal. I can't even begin to count the number of times I had a knife against my wrist. I tried to drown myself. I constantly thought of jumping. Everything was distorted. I was always so angry, so upset at the world, building up conspiracy theories about how everyone was out to get me. I lashed out at my family all the time. I saw multiple different psychologists and psychiatrists. This continued for years.
At 18, I entered a psychiatric day program for youth - my first hospitalization. I lost a semester of school to the five months I spent there. Because of it, I did not graduate with my class. But good things came of it. The constant care meant that my psychiatrist was able to monitor every little bit of my med changes, carefully tweaking dosages and drugs until the right combination was found. There I received CBT (Cognitive Behavioural Therapy) for the first time in my life, and to this day I still use techniques I learned there. When I left, I was stable for the first time in my life.
This stability continued for a number of years, the whole time of which I did not stop treatment, neither medications nor sessions with my psychiatrist and psychologist. I finished high school. I went to York University for computer sciences for two years, figured out that I really hate computers, then moved to Israel. I met the woman that would become my wife. I learned one year of Biology at Hebrew University, then transferred to Nursing after Biology proved to be a bust. On February 17, 2009, we welcomed our twin daughters into the world.
Anyone who says that there is no such thing as post-partum depression in fathers is a liar.
Also shortly after the girls were born, I was diagnosed (in a wonderfully half-assed manner) with Celiac Disease. Needless to say, not being allowed to eat bread did not help my mental state. I lasted on the diet for 5 months until I convinced my gastroenterologist that for the greater good of my mental health, I cannot be on this diet.
But things kept getting worse. The depression got worse. The anxiety got worse. More med changes. More psychotherapy. And then, another medical crisis: At age 27, I had a heart attack. At that age, even with my family history, it shouldn't have happened. I survived it thanks to the medical team that treated me. The response I was given when I asked why it happened: Genetics and luck. But a week before the heart attack, I switched medications to Venlafaxine (Viepaxx), an anti-depressant that works on different receptors than most other anti-depressants. A year later, I read a study that said that Venlafaxine has been shown to have a link to heart attacks in young patients.
The honeymoon period of "I survived something that should have killed me" ended quickly. I got angry with God, swearing at God, cursing God out for letting me survive the heart attack only to make me suffer more. The depression kept on getting worse and worse. Everything was horrible for me. My brain was functioning considerably slower than usual, which, for someone like me who relies so heavily on cognitive functioning to feel good about myself, exacerbated the situation. I was tired all the time. I was hungry all the time. My sex drive dropped. I wanted to die. A year or so after the heart attack, I ended up in the ER of Kfar Shaul, one of Jerusalem's main psychiatric hospitals. They referred me to an outpatient hospitalization at Maon Yerushalayim.
I spent two and a half months at Maon Yerushalayim and went through a number of med changes. However, though the referral letter from the ER specifically said that I needed to be receiving CBT, I didn't. They simply didn't have those resources there. None of their psychologists or psychiatrists were trained in it. But at least I left there not wanting to kill myself.
I transferred to a private clinic, where the psychiatrist's theory was that much of my psychiatric problems could be solved if we dealt with the old diagnosis of ADD. This psychiatrist was so dogmatically faithful to his belief that he and his team didn't give a crap to see that the depression got worse instead of better. He milked me and my family of tens of thousands of shekels, letting me crash and burn in the process.
I changed psychiatrists. My new psychiatrist changed my meds again. But it was too little, too late. Purim 2013 I ended up back in the ER at Kfar Shaul, writhing in pain from depression and anxiety. I was hospitalized internally for two and a half months.
Three good things came of this hospitalization: I leveled out to the medications that I am still taking today, I was diagnosed with Borderline Personality Disorder, and I found a job entirely by accident, the same job I'm working at today as a councilor for a social club for people dealing with mental illness. The rest of the hospitalization was torturous. My psychiatrist had an anger problem that made my anger problem look tame, at one point screaming at a patient during a group session. The head psychiatrist of my ward called me, to my face, "a problem child that acts like a baby" - words that to this day are burned into my mind. I spent a night in the lockup ward, and I can't begin to explain the horrific conditions those patients endured.
I left Kfar Shaul feeling almost as broken as when I went in. It took me months to recover from the trauma.
But things got better. I started going to DBT - Dialectical Behavioural Therapy, which worldwide is known as the standard treatment for BPD for twenty years. (Unfortunately, because mental health care in Israel is still nominally stuck in the 1970s, DBT is not available through public healthcare, but must be paid for privately.) I went back to school, and I'm now two weeks away from finishing my final assignment. Up until a month ago, I was the most stable I'd been since I was 19. I'm stabilizing again. The meds are working, the therapy is working, and I'm working on staying stable.
Mental illness is a chronic condition, just like any other chronic condition. But it is unlike every other chronic condition because of the stigma attached to it. The classic example I give is that when I had my heart attack, the entire congregation at the synagogue in which I grew up prayed and recited Psalms for my recovery. This did not happen when I was hospitalized for depression. But stigma goes much deeper than that. Stigma marginalizes the mentally ill patient. Stigma marginalizes the importance of high-quality care for the mentally ill patient. We wouldn't accept this kind of neglect in any other field of medicine. We shouldn't accept it for psychiatry. By opening up and talking about mental illness, we start a dialogue that can shatter the stigma that has forced the mentally ill underground, something to be hidden and ignored. We can break the chain of underfunding, of abusive caregivers, of subhuman conditions in hospitals. We can make the mental health care system more approachable and more friendly to those that so desperately need its help. We can #BreaktheStigma.
