Drawing on philosophy, theology and psychoanalysis as well as on literary criticism, this collection of essays explores a range of fantasy texts with particular attention to the various ways in which they seek to deal with the reality of death. The essays uncover some fascinating links, and indeed tensions, between the writers discussed.

This paper engages the philosophical concepts of subjectification and acknowledgment in conversation with Philip Pullman’s young adult novel, Northern Lights. Our particular focus is Lyra Belacqua, Pullman’s central character. Precarious in her vulnerability and in her unknown significance, we read Lyra as usefully negotiating the dangerous transition from childhood to adolescence. In her negotiation of this complex liminality, we argue that Lyra models those difficult-to-define moments encountered by children as they learn to be in and of the (...) world. Situating our reading in a Philosophy of Education discourse, we draw theoretically from the work of Gert Biesta and Stanley Cavell. With Biesta as the primary focus of our paper, we generalize beyond Northern Lights to argue that the reading of fiction constitutes “a weak educational event” in Biesta’s intriguing understanding of that phrase. Partly as a theoretical framing for the Pullman text, we begin with an outline of Biesta’s philosophy. (shrink)

This collection explores the impact of Richard Dawkins as scientist, rationalist and one of the most important thinkers alive today. Specially commissioned pieces by leading figures in science, philosophy, literature, and the media, such as Daniel C. Dennett, Matt Ridley, Steven Pinker, Philip Pullman and the Bishop of Oxford, highlight the breadth and range of Dawkins' influence on modern science and culture, from the gene's eye view of evolution to his energetic engagement in public debates on science, rationalism, (...) and religion. The volume includes personal reminiscences and critical debate as well as accessible discussions of science – it provides a stimulating tribute to a remarkable intellectual. (shrink)

'An alarming and illuminating book. The story of how we have allowed private corporations to patent genes, to stockpile human tissue, and in short to make profits out of what many people feel ought to be common goods is a shocking one. No one with any interest at all in medicine and society and how they interact should miss this book, and it should be required reading for every medical student,'--Philip Pullman.

The renowned Nobel Prize-winning scientist's elegant and concise explanation of the fundamental ideas in biology and their uses today. Hailed by Philip Pullman as "a great communicator" who is also "as distinguished a scientist as there could be," Paul Nurse writes with delight at life's richness and a sense of the urgent role of biology in our time. With What Is Life? he delivers a brief but powerful work of popular science in the vein of Carlo Rovelli's Seven (...) Brief Lessons in Physics. Nurse takes readers on a wondrous journey through five fundamental biological ideas-the Cell, the Gene, Evolution by Natural Selection, Life as Chemistry, and Life as Information-introducing the scientists who made the most important advances and taking us into his own lab to give us a sense of the thrill of scientific discovery. In a final chapter, Nurse addresses biology's most pressing ethical issues (including gene-editing, genetic testing, and genetically modified crops), and he concludes with a stirring encomium to biology's role in tackling infectious disease. (shrink)

Bernard Schweizer explores a hitherto neglected strain of religious rebellion. Misotheism, or hatred of God, is more radical than atheism. God-haters do not question God's existence, but instead deny his competence and goodness. Sifting through centuries of evidence and uncovering fascinating networks of influences among writers and thinkers as diverse as Friedrich Nietzsche, Zora Neale Hurston, and Philip Pullman. Schweizer reveals deep undercurrents of misotheism in many acclaimed works of literature and philosophy.

This chapter shows how and how far humanism has found expression in more recent fiction. If one has to consider whether the novel is humanistic, one must examine the values held by the people, which become clear despite their not being in the habit of articulating them. Accounts of post‐war immigrants coming into England can provide a basis for acute observation, in ways that cast light on our central concern. Material for thinking about humanism in the contemporary world is particularly (...) well provided by novels giving an overall account of society, often referred to as condition‐of‐England fiction. Perowne believes that the failure of political utopianism in the twentieth century has left most people, with ‘a queasy agnosticism’ about social justice and the distribution of wealth. The chapter concludes with the discussion of a piece of fiction, Philip Pullman's The Good Man Jesus and the Scoundrel Christ. (shrink)

We explore how story has the potential to encourage environmental engagement and a sense of agency provided that critical discussion takes place. We illuminate this with reference to the philosophies of John Macmurray on personal agency and social relations; of John Dewey on the primacy of experience for philosophy; and of Paul Ricoeur on hermeneutics, dialogue, dialectics and narrative. We view the use of fiction for environmental understanding as hermeneutic, a form of conceptualising place which interprets experience and perception. The (...) four writers for young people discussed are Ernest Thompson Seton, Kenneth Grahame, Michelle Paver and Philip Pullman. We develop the concept of critical dialogue, and link this to Crick's demand for active democratic citizenship. We illustrate the educational potential for environmental discussions based on literature leading to deeper understanding of place and environment, encouraging the belief in young people that they can be and become agents for change. We develop from Zimbardo the key concept of heroic resister to encourage young people to overcome peer pressure. We conclude with a call to develop a greater awareness of the potential of fiction for learning, and for writers to produce more focused stories engaging with environmental responsibility and activism. (shrink)

_Talking Books_ sets out to show how some of the leading children's authors of the day respond to these and other similar questions. The authors featured are _ Neil Ardley, Ian Beck, Helen Cresswell, Gillian Cross, Terry Deary, Berlie Doherty, Alan Durant, Brian Moses, Philip Pullman, Celia Rees, Norman Silver, Jacqueline Wilson, and Benjamin Zephaniah_. They discuss with great enthusiasm: *their childhood reading habits *how they came to be published *how they write on a daily basis *how a (...) particular book came together *a type of writing that they are especially known for. Through in-depth interviews, they each reveal their approach to their craft. Much is know and spoken of the product that is the children's book, but it is rare that writers are given the opportunity to talk at length about the process of writing for children. _Talking Books_ redresses the balance by presenting a wide selection of authors (of fiction, non-fiction and poetry) reflecting upon the joys and challenges of the craft, creativity and process of writing for children. (shrink)

This collection explores the impact of Richard Dawkins as scientist, rationalist and one of the most important thinkers alive today. Specially commissioned pieces by leading figures in science, philosophy, literature, and the media, such as Daniel C. Dennett, Matt Ridley, Steven Pinker, Philip Pullman and the Bishop of Oxford, highlight the breadth and range of Dawkins' influence on modern science and culture, from the gene's eye view of evolution to his energetic engagement in public debates on science, rationalism, (...) and religion. The volume includes personal reminiscences and critical debate as well as accessible discussions of science – it provides a stimulating tribute to a remarkable intellectual. (shrink)

In lieu of an abstract, here is a brief excerpt of the content:"Spirituality":"Weasel-Word" or Gateway to New Understanding?Peter Gilbert (bio)Keywordsspirituality, faith communities, NIMHEVisiting the Samuel Palmer Exhibition at the British Museum, I was struck, not only by the spiritual power of the paintings, especially in the late Shoreham period such as, my favorite: The Magic Apple Tree (circa 1830)—but how Palmer appeared to bring both Christian and Pantheistic themes into his work. The museum's exhibition collator remarks that Palmer saw the (...) fruitfulness of the earth as an intimation of Divine creativity. The artist sought to capture "The essential vivifying spirit, vital spark" (Palmer's words) of the physical world in which we live.I was reminded as I moved from The Magic Apple Tree, to In a Shoreham Garden, and The Golden Valley, how these paintings had been used by a record company when they had issued all of Ralph Vaughan Williams' orchestral and choral works in the 1970s, to mark his anniversary. Vaughan Williams was not a signed up Christian, but many of his choral works express a strong yearning for the transcendent using Christian imagery. The day before I visited the Palmer exhibition, I listened to Professor Robert Winston on Start the Week (28th November, 2005), in which he spoke of his BBC series The Story of God (Winston, 2005). As a scientist, Winston is intrigued as to why humans seek the transcendent. He continually refers to this desired other as "God," although I think it would be more accurate to call it a search for the transcendent. Winston puzzles over why there appears to be "a God-shaped hole" within humanity (Start the Week, November, 28, 2005), and again, as a scientist, postulates that: "the more we understand about science, the less we understand about the Universe."In the light of the most popular films and books at present, the search for something beyond ourselves appears to be very much at the center, rather than at the periphery of humanity's consciousness at the present time. Reading Philip Pullman's His Dark Materials trilogy, and reading his various essays, we are struck by his articulation of the human search:We need a story, a myth that does what the traditional religious stories did. It must explain. It must satisfy our hunger for a Why... There are two kinds of Why, and our story must deal with both. There's the one that asks What brought us here? and the other that asks What are we here for?(Pullman, 2001)The author's article is very helpful in its practical approach to psychotherapy and spirituality. I particularly liked her reference to the work of Charles Corr (1991) and his work with people [End Page 197] who are dying and considering the physical, psychological, social, and spiritual aspects of the last days. The spiritual aspects being around identifying, developing, or reaffirming spiritual sources of energy and hope. This is the kind of approach that the National Institute for Mental Health in England (NIMHE) national Project on Spirituality and Mental Health has been engaged in since 2001, the approach being to stress the spiritual dimension as an integral part of a whole person and whole systems approach to mental health; work with mental health services and their partners to engage with this agenda; and work toward a better understanding between faith communities and mental health services (see Gilbert and Nicholls, 2003). Service users and their carers are increasingly stating strongly to services that they wish to have their spiritual dimension and spiritual needs addressed properly—and certainly not in a "tick-box" method! The author quotes Samson and Zerter (2003) as saying that the person's spiritual dimension "draws a thread of identity, relationship, meaning and purpose, which weave through each of these aspects" (i.e. the life events and other aspects of their being).I welcome the author's stress on a "relational approach," and her breadth of reference, for example, the diary of Marcus Aurelius, the Roman emperor and philosopher, but I had some concerns about her use of the term personal theology, and talk of the personal aspect of religion and "the Divine," in that I think that this could... (shrink)

_Esotericism, Art, and Imagination_ is a uniquely wide- ranging collection of articles by scholars in the field of Western esotericism, focusing on themes of poetry, drama, film, literature, and art. Included here are articles illuminating such diverse topics as the Gnostic fiction of Philip Pullman, alchemical images, the Tarot, surrealism, esoteric films, and much more. This collection reveals the richness and complexity of the intersections between esotericism, artistic creators, and their works. Authors include Joscelyn Godwin, Cathy Gutierrez, M. (...) E. Warlick, Eric Wilson, and many others. (shrink)

In lieu of an abstract, here is a brief excerpt of the content:IntroductionAuthority in Buddhism and ChristianityElizabeth HarrisThis issue of Buddhist-Christian Studies contains the papers 1 presented at the conference of the European Network of Buddhist Christian Studies, held in June 2009 at the Benedictine Archabbey of St. Ottilien near Munich on the theme “Authority in Buddhism and Christianity.” 2The European Network of Buddhist Christian Studies grew from a conference convened by the Rev. Gerhard Köberlin at the Academy of Mission (...) in Hamburg in 1996, which drew together Christians involved in the academic study of Buddhism. The next conference, held at the Archabbey of St. Ottilien, attracted Buddhist participants also. It was at this point that the current name of the network was adopted. The aims of the network are to promote within Buddhist-Christian relations mutual understanding and dialogue, academic study, and practical cooperation and friendship. The network’s main activity is a biennial academic conference on a theme important to the development of Buddhist-Christian relations. Conference themes have included “Buddhist Perceptions of Jesus”; “Christian Perceptions of the Buddha”; “Buddhism, Christianity and Creation”; “Conversion and Religious Identity in Buddhism and Christianity”; and “Buddhist Attitudes to Other Religions.” 3 Invited presentations on selected aspects of the chosen theme, each of which is addressed by a Buddhist and a Christian, form the core of each conference. The papers from the “Authority” conference follow the same pattern.The theme of authority was chosen because of its central significance in the contemporary world, not only to religious traditions but also to secular society. When, as the current President of the network, I gave an introduction to the theme of authority in Buddhism and Christianity on the first evening, I began with secular society and the play Waiting for Godot.4 Written by the English playwright Samuel Beckett, it was first performed in 1955. Many viewers were mystified by it because there was so little action. The play focuses on Vladimir and Estragon, two elderly men, dressed in ragged clothes, who talk together in a nondescript place, close to a tree. They are waiting for Godot, a shadowy figure of hope or authority, with whom they believe they have an appointment. Godot never comes, although a boy comes on stage to say [End Page 43] that Godot will definitely come the next day. Behind the conversation lies the threat of punishment: “And they didn’t beat you?” Vladimir asks Estragon at the beginning. “Certainly they beat me!” Estragon replies. The agents of this never appear and are never defined.The play is shot through with religious imagery, but it is twisted and distorted, placed within a barren landscape, in which the two men create a world for themselves through words. The lack or failure of any authority is a central theme of the play. Believing they have an appointment with “authority,” the men are unable to move or use self-directed agency. I compared this with the figure of authority in Philip Pullman’s trilogy, His Dark Materials. At the beginning, what is named “The Authority” by “religious” leaders appears anything but shadowy. It is magisterial and Godlike, and inspires powerful institutions. In the end, however, this Authority is revealed as a thing of shadows—a pitiful, terrified, wizened old man. Pullman describes him as “demented and powerless,” weeping, mumbling in fear and pain and misery.5 He is as light as paper and has no will of his own. When he is taken out of his cage, the wind takes him and he disintegrates with an expression of profound relief on his face.Waiting for Godot and His Dark Materials give expression to the crisis of authority in our postmodern world, the first theme that the conference and this volume explores. According to the Oxford English Dictionary, authority is first and foremost the power or right to enforce obedience. That any being, institution, or set of beliefs should have that power, however, is being called into question throughout the world. Kajsa Ahlstrand, in her contribution, examines differing attitudes toward authority in the Christian tradition, paying particular attention to the consequences for Christianity of the twentieth century crisis in obedience, which was sharpened by awareness that the Holocaust was... (shrink)

Canada and California each introduced legislation to permit medical assistance in dying in June, 2016. Each jurisdiction publishes annual reports on the number of deaths that occurred under their respective legislations in the previous years. The numbers are disturbingly different. In 2021, 486 individuals died under California’s End of Life Option. In the same year 10,064 Canadians died under that country’s Medical Assistance in Dying (MAiD) legislation. California has a slightly larger population than Canada, and while medically assisted deaths as (...) a percentage of total deaths remained virtually unchanged in California from 2020-2021, Canada saw a 30% increase from 2020 to 2021. This essay examines some of the factors propelling Canada down the slippery slope of medically assisted suicide, as well as those that may be keeping California and other US jurisdictions from taking the slide. At a time of increasing pressure in many jurisdictions (both nationally and internationally) to liberalize access to medical assistance in dying, some lessons from this comparative analysis are offered. (shrink)

This article discusses the response of our ethics consultation service to an exceptional request by a patient to have his implantable cardioverter defibrillator removed. Despite assurances that the device had saved his life on at least two occasions, and cautions that without it he would almost certainly suffer a potentially lethal cardiac event within 2 years, the patient would not be swayed. Although the patient was judged to be competent, our protracted consultation process lasted more than 8 months as we (...) consulted, argued with, and otherwise cajoled him to change his mind, all to no avail. Justifying our at times aggressive paternalistic intervention helped us to reflect on the nature of autonomy and the dynamics of the legal, moral, and personal relationships in the clinical decision-making process. (shrink)

Inasmuch as unmitigated pain and suffering areoften thought to rob human beings of theirdignity, physicians and other care providersincur a special duty to relieve pain andsuffering when they encounter it. When pain andsuffering cannot be controlled it is sometimesthought that human dignity is compromised.Death, it is sometimes argued, would bepreferred to a life without dignity.Reasoning such as this trades on certainpreconceptions of the nature of pain andsuffering, and of their relationships todignity. The purpose of this paper is to laybare these (...) preconceptions. The duties torelieve pain and suffering are clearly mattersof moral obligation, as is the duty to respondappropriately to the dignity of other persons.However, it is argued that our understanding ofthe phenomena of pain and suffering and theirrelationships to human dignity will be expandedwhen we explore the aesthetic dimensions ofthese various concepts. On the view presentedhere the life worth living is both morally goodand aesthetically beautiful. Appropriate``suffering with'''' another can help to maintainand restore the dignity of the relationshipsinvolved, even as it preserves and enhances thedignity of patient and caregiver alike. (shrink)

Previously, academics have explored ways that critical realism (CR) and grounded theory (GT) can be combined to potentiate the strengths and mitigate the perceived limitations of each. This literature is reviewed, with a particular focus on eight studies that utilized this combination in different contexts. It concludes that collectively they offer ‘proof of concept’ of this approach, producing robust analyses and novel findings. Importantly, three of these studies by Kempster, Redman-Maclaren and Mills, and Pullman shared a multistage, iterative design (...) involving study participants in forms of codesign of the finished GTs. This paper posits that such designs enhance internal validity while according well with recent political and policy imperatives for service user co-design in the planning implementation and review of social service programmes. It also posits that this structure may be used fruitfully within critical realist research and the conceptually related field of realist evaluation. (shrink)

"Pullman offers his readers essential insights into how humans reason and make decisions. Both concise and far-reaching, his work teaches us how to challenge intuitive logic and examine the processes for deliberative reasoning. This text will prove foundational for students in their intellectual journey toward the development of real skills in critical thinking. By pointing to simple yet profound examples, Pullman's text is both readable and provocative as it challenges us to consider the very mechanisms by which we (...) understand our own cognitive biases." --Bradley A. Hammer, Department of English and Comparative Literature, University of North Carolina, Chapel Hill. (shrink)

I want to begin this brief response by thanking all of those who took the time to read and reflect upon this piece. There were many thoughtful and thought provoking responses and I have learned fro...

Feticide, the practice of terminating the life of an otherwise viable fetus in utero, has become an increasingly common practice in obstetric centres around the globe, a concomitant of antenatal screening technologies. This paper examines this expanding practice in light of the concept of human dignity. Although it is assumed from the outset that even viable human fetuses are not persons and as such do not enjoy full membership in the moral community, it is argued that the fact that these (...) are nevertheless human fetuses affords them prima facie moral status. Thus even those who accept a liberal position with regard to therapeutic abortion, should be concerned about these more recent developments. Indeed, how we treat viable human fetuses has implications for our prospective treatment of other human non-persons and could undermine the common human dignity we all share. (shrink)

This paper explores the problem of universalism and particularism in contemporary ethics, and its relationship to Christian bioethics in particular. An ethic of human dignity is outlined, which, it is argued, constrains moral discourse in the broad sense – thus meeting the demands of universalism – but which is at the same time amenable to a variety of particularist interpretations – thus acknowledging the current shift toward historicism, traditionalism, and culture. The particularist interpretations that are of central concern here are (...) those provided by historic Christianity. The eventual goal is to indicate how a Christian conception of human dignity can have universal normative relevance both as a standard against which to assess competing particularist conceptions, and as a practical guide for everyday living. A Christian conception of dignity will in turn have significant implications when addressing contemporary issues in bioethics. These are ambitious goals, and a full explication of the ideas presented will not be possible in this context. Nevertheless, there is value in getting a bird's-eye view of the landscape before one goes about scaling the mountains and exploring the valleys. The present essay is intended as a general geography of the moral terrain in which an ethic of dignity in general, and a Christian perspective on dignity in particular, can provide normative guidance. (shrink)

Volume 25, Issue 5, May 2025, Page 26-28.

Le concept de dignité humaine occupe une place prépondérante dans les débats sur l’aide médicale à mourir. Pourtant, la notion de « dignité » est souvent ambiguë. Cet article vise à clarifier une partie de cette ambiguïté en distinguant deux conceptions différentes mais liées de la dignité, l’une étant une notion fondamentalement morale (« Dignité » — majuscule) et l’autre une conception plus esthétique (« dignité » — minuscule). La relation dynamique qui existe entre la notion morale de « Dignité (...) » et son pendant esthétique (« dignité ») est examinée. Si une société pluraliste a besoin des deux notions, seule la notion morale objective (Dignité) est adéquate pour servir de fondement à un régime juridique fondamental. Si toute société pluraliste doit offrir des possibilités d’expression des notions esthétiques subjectives de dignité, ces dernières ne peuvent ni servir de fondement à une éthique publique globale en général, ni définir les paramètres d’une politique publique en matière d’homicide médicalisé. En effet, l’expansion sans limite d’une notion particulière de « dignité » menace d’effacer la conception plus fondamentale de la Dignité qui sert de fondement à toute société démocratique libérale. (shrink)

Narrative theory is a dynamic and evolving field of inquiry that has made tremendous inroads in the medical humanities over the past 40 years. Numerous authors have popularized the idea that “thinking narratively” can produce important insights about the illness experience for physician and patient alike. This paper draws on aspects of narrative theory to emphasize the moral responsibilities that arise when we step into another person's life narrative, becoming a character in her or his story. This has especially significant (...) ethical implications for the physician–patient encounter in that each character in this shared story experiences time somewhat differently. This gives rise to the notion of “slow motion ethics” and a somewhat unique perspective on the moral responsibilities clinicians bear toward their patients. (shrink)

Historically the primary role of the Institutional Review Board (IRB) has been "to assure, both in advance and by periodic review, that appropriate steps are taken to protect the rights and welfare of humans participating as subjects in research" (U.S. FDA, 1996). However, there is much to suggest that IRBs have been unable to fulfil this mandate, particularly in regard to the matter of informed consent. Part of the problem in this regard is that the competing interests of other stakeholders (...) often undermine the IRB's capacity to serve the best interests of research subjects. This paper proposes an alternative view of the role of the IRB. It begins by treating the interests of other stakeholders as legitimate matters of concern for IRBs. Hence the process established to review and monitor human research should be treated as an exercise in social justice in which the interests of all legitimate stakeholders must be represented and considered. A variation of Rawls' (1971) heuristic "the veil of ignorance" is employed to explore the dynamic relationship between knowledge and interests that ensues when the role of the IRB is characterized in this manner. Inadequacies in the informed consent process are taken as illustrative of the inability of IRBs as they are presently construed to attend to the interests of research subjects. The major normative implication of the analysis offered here is that the role of the IRB must be expanded to include the granting of a provisional proxy consent on behalf of prospective research subjects. This provision is necessary, it is argued, if the interests of research subjects are to be fairly assessed by IRBs as a matter of social justice. It is necessary as well to ensure that an adequate standard of informed consent is attained. Somewhat paradoxically it is argued competing sets of interests the IRB must serve, rather than as the primary concern of the IRB. (shrink)

The author examines fundamental problems involved in teaching applied ethics in the educational environment of contemporary university culture. American universities are increasingly turning away from liberal arts education and focusing their efforts on constructing more professionalized degrees and programs. As a result, the education process has become increasingly commodified and ethics courses in universities have been further removed from the liberal arts project of moral development in the classroom. The author argues that ethicists should work to reframe the project of (...) moral education if they hope to retain a central role in the process of teaching ethics. The author suggests a growth model to be installed in the undergraduate curriculum that would reacquaint students with the aims and benefits of learning ethical and moral philosophy. (shrink)

This chapter contains sections titled: Introduction Human DNA as Cultural Property The Genetic Appropriation of Culture Community Identity, Cultural Offense and Control of Genetic Information Conclusion References.

BackgroundWhile genomic data sharing can facilitate important health research and discovery benefits, these must be balanced against potential privacy risks and harms to individuals. Understanding public attitudes and perspectives on data sharing is important given these potential risks and to inform genomic research and policy that aligns with public preferences and needs.MethodsA cross sectional online survey measured attitudes towards genomic data sharing among members of the general public in an Eastern Canadian province.ResultsResults showed a moderate comfort level with sharing genomic (...) data, usually into restricted scientific databases with controlled access. Much lower comfort levels were observed for sharing data into open or publicly accessible databases. While respondents largely approved of sharing genomic data for health research permitted by a research ethics board, many general public members were concerned with who would have access to their data, with higher rates of approval for access from clinical or academic actors, but much more limited approval of access from commercial entities or governments. Prior knowledge about sequencing and about research ethics boards were both related to data sharing attitudes.ConclusionsWith evolving regulations and guidelines for genomics research and data sharing, it is important to consider the perspectives of participants most impacted by these changes. Participant information materials and informed consent documents must be explicit about the safeguards in place to protect genomic data and the policies governing the sharing of data. Increased public awareness of the role of research ethics boards and of the need for genomic data sharing more broadly is also needed. (shrink)

BackgroundIn 2009, Dr. Paolo Zamboni proposed chronic cerebrospinal venous insufficiency (CCSVI) as a possible cause of multiple sclerosis (MS). Although his theory and the associated treatment (“liberation therapy”) received little more than passing interest in the international scientific and medical communities, his ideas became the source of tremendous public and political tension in Canada. The story moved rapidly from mainstream media to social networking sites. CCSVI and liberation therapy swiftly garnered support among patients and triggered remarkable and relentless advocacy efforts. (...) Policy makers have responded in a variety of ways to the public’s call for action.DiscussionWe present three different perspectives on this evolving story, that of a health journalist who played a key role in the media coverage of this issue, that of a health law and policy scholar who has closely observed the unfolding public policy developments across the country, and that of a medical ethicist who sits on an expert panel convened by the MS Society of Canada and the Canadian Institutes of Health Research to assess the evidence as it emerges.SummaryThis story raises important questions about resource allocation and priority setting in scientific research and science policy. The growing power of social media represents a new level of citizen engagement and advocacy, and emphasizes the importance of open debate about the basis on which such policy choices are made. It also highlights the different ways evidence may be understood, valued and utilized by various stakeholders and further emphasizes calls to improve science communication so as to support balanced and informed decision-making. (shrink)

Philip Kitcher and I agree that cognitive values are not only intelligible but play an important role in scientific inquiry. We also agree that the importance of authority is critical to understanding the social dimension of such inquiry. We disagree rather deeply concerning what the roles of cognitive goals and the social dimension are.