To grasp what might exist beyond neoliberalism, we need to rethink the history of development before neoliberalism. This article makes two arguments. First, for poorer countries, processes of commodification which are highlighted as evidence of neoliberalism often predate the neoliberal era. Third World development policies tended to make social and economic life more precarious as a corollary to capital accumulation before neoliberalism as an ideology took hold. Second, the intense theoretical and discursive focus on neoliberalism has obscured a tangible shift (...) towards de-commodification in much of the global South. The most salient examples today are state-led social assistance programs that have been implemented across the former Third World. These emerged not out of technocratic fixes from above but often out of political and social struggles from below. The rise and spread of these programs are not only in stark contrast to popular conceptions of a neoliberal reinforcement, but are also specifically targeted at social strata whose precarity commonly originated in developmental policies before the neoliberal era. Utilizing a database of 183 active flagship social assistance programs in 84 developing countries, we present macro-level quantitative evidence of the rise and spread of social protection policies over the past two decades in the global South. We then detail these programs for four middle-income countries—China, Brazil, India, and South Africa. To those who lament that the 2008 crisis has produced no Polanyian double movement, we argue that these state-driven social assistance policies are such a mechanism. (shrink)

This book reconceives disability as a set of social relations and practices, as experienced embodiment, and as an emancipatory movement, as well as a biomedical phenomenon. The author brings new attention to complex ethical questions surrounding disability, looking at not only the biomedical understanding of impairment, but also its cultural representations and social organization.

"And God said, Let us make man in our image, after our likeness and let them have dominion over the fish of the sea, and over the fowl of the air, and over the cattle, and over all the earth, and over every creeping thing that creepeth upon the earth." --Genesis 1:24-26 In this crucial passage from the Old Testament, God grants mankind power over animals. But with this privilege comes the grave responsibility to respect life, to treat animals with (...) simple dignity and compassion. Somewhere along the way, something has gone wrong. In Dominion , we witness the annual convention of Safari Club International, an organization whose wealthier members will pay up to $20,000 to hunt an elephant, a lion or another animal, either abroad or in American "safari ranches," where the animals are fenced in pens. We attend the annual International Whaling Commission conference, where the skewed politics of the whaling industry come to light, and the focus is on developing more lethal, but not more merciful, methods of harvesting "living marine resources." And we visit a gargantuan American "factory farm," where animals are treated as mere product and raised in conditions of mass confinement, bred for passivity and bulk, inseminated and fed with machines, kept in tightly confined stalls for the entirety of their lives, and slaughtered in a way that maximizes profits and minimizes decency. Throughout Dominion , Scully counters the hypocritical arguments that attempt to excuse animal abuse: from those who argue that the Bible's message permits mankind to use animals as it pleases, to the hunter's argument that through hunting animal populations are controlled, to the popular and "scientifically proven" notions that animals cannot feel pain, experience no emotions, and are not conscious of their own lives. The result is eye opening, painful and infuriating, insightful and rewarding. Dominion is a plea for human benevolence and mercy, a scathing attack on those who would dismiss animal activists as mere sentimentalists, and a demand for reform from the government down to the individual. Matthew Scully has created a groundbreaking work, a book of lasting power and importance for all of us. (shrink)

The work of a bioethicist carries distinctive responsibilities. Alongside those of any worker, there are responsibilities associated with giving guidance to practitioners, policy makers and the public. In addition, bioethicists are professionally exposed to and required to identify situations of moral trouble, and as a result may find themselves choosing to work as advocates or activists, with responsibilities that are distinct from those generally acknowledged within academia. The requirement for bioethics to make normative judgements entails taking a stance, which means (...) there cannot be a sharp line between ‘academic’ or ‘objective’ bioethics, and advocacy/activism, but a continuum of bioethicists’ engagement and an associated continuum of responsibilities. (shrink)

Susan has been profoundly deaf since childhood. She is a hearing aid wearer, and likes to use the induction loops built into some public spaces, such as theaters and cinemas, to help cut down the background noise that can make hearing speech very difficult. But this depends on the building having an induction loop fitted and properly maintained. Like many other induction loop users, Susan frequently finds that the advertised loop system is either working poorly or not working at all. (...) Almost as often, she then has the experience of making a complaint about it only to have the problem denied. If she persists, she is often then met... (shrink)

Pandemics such as COVID-19 place everyone at risk, but certain kinds of risk are differentially severe for groups already made vulnerable by pre-existing forms of social injustice and discrimination. For people with disability, persisting and ubiquitous disablism is played out in a variety of ways in clinical and public health contexts. This paper examines the impact of disablism on pandemic triage guidance for allocation of critical care. It identifies three underlying disablist assumptions about disability and health status, quality of life, (...) and social utility, that unjustly and potentially catastrophically disadvantage people with disability in COVID-19 and other global health emergencies. (shrink)

This essay critically assesses the assumption that disabled people have special vulnerabilities that are distinct from the ontological vulnerability of all human life. By re-examining the relationships between vulnerability, dependency, and loss of autonomy, the essay challenges the consensus that dependencies, and the vulnerabilities that come with them, are necessarily incompatible with full autonomy. Furthermore, if dependencies are ubiquitous rather than limited to disabled persons or the very young, old, or ill, the ‘special’ nature of disability-related vulnerabilities must be reconsidered. (...) The essay argues that the line between ‘normal’ and ‘special’ vulnerability is not natural but established through social and political decisions that determine when a dependency will be taken for granted and when it is marked as exceptional. Thus a more comprehensive notion of ontological vulnerability, including the vulnerabilities that develop through all forms of dependency, may be ethically and politically preferable to a narrower one. (shrink)

This chapter examines the ways in which disabled people are subject to epistemic injustice. It starts by introducing how social epistemology models the creation of shared knowledge and then uses feminist epistemology to highlight the role of social and political power in producing epistemic privilege, exclusion, and oppression. The well-known concepts of testimonial and hermeneutic epistemic injustice are discussed in relation to disability, showing how these forms of injustice are frequently experienced within the lives of disabled people. In particular, disabled (...) experience has features that distinguish it from the experiences of sexism and racism most commonly used as illustrations of epistemic injustice. The chapter ends by arguing that the potential for epistemic injustice poses unprecedented risks for disabled people in the current context, which could be minimized by recognizing that ignorance about disabled lives is not inevitable, but something that can and should be challenged. (shrink)

Over the last decade, bioethics has begun to address the ethical issues emerging as artificial intelligence (AI) and associated technological processes such as automated decision-making (ADM) become part of healthcare and research. Recent work on justice in AI demonstrates that supposedly neutral AI systems can perpetuate the marginalization of various communities. But so far, there has been little exploration of the interaction of AI and disability. In this empirically based project, we have explored the implications of ADM in the lives (...) of people with disability in Australia. This paper focuses on a point that was consistently raised in discussion by disabled participants but is rarely encountered in the AI ethics literature, especially in relation to disability: the problem of automated systems’ failures of recognition. (shrink)

Stephen Scully both offers a reading of Hesiod's Theogony and traces the reception and shadows of this authoritative Greek creation story in Greek and Roman texts up to Milton's own creation myth, which sought to "soar above th' Aonian Mount [i.e., the Theogony]...and justify the ways of God to men." Scully also considers the poem in light of Near Eastern creation stories, including the Enûma elish and Genesis, as well as the most striking of modern "scientific myths," Freud's (...) Civilization and its Discontents. Scully reads Hesiod's poem as a hymn to Zeus and a city-state creation myth, arguing that Olympus is portrayed as an idealized polity and - with but one exception - a place of communal harmony. This reading informs his study of the Theogony's reception in later writings about polity, discord, and justice. The rich and various story of reception pays particular attention to the long Homeric Hymns, Solon, the Presocratics, Pindar, Aeschylus, Aristophanes, and Plato in the Archaic and Classical periods; to the Alexandrian scholars, Callimachus, Euhemerus, and the Stoics in the Hellenistic period; to Ovid, Apollodorus, Lucian, a few Church fathers, and the Neoplatonists in the Roman period. Tracing the poem's reception in the Byzantine, medieval, and early Renaissance, including Petrarch and Erasmus, the book ends with a lengthy exploration of Milton's imitations of the poem in Paradise Lost. Scully also compares what he considers Hesiod's artful interplay of narrative, genealogical lists, and keen use of personified abstractions in the Theogony to Homeric narrative techniques and treatment of epic verse. (shrink)

Mitochondrial replacement techniques are intended to avoid the transmission of mitochondrial diseases from mother to child. MRT represent a potentially powerful new biomedical technology with ethical, policy, economic and social implications. Among other ethical questions raised are concerns about the possible effects on the identity of children born from MRT, their families, and the providers or donors of mitochondria. It has been suggested that MRT can influence identity directly, through altering the genetic makeup and physical characteristics of the child, or (...) indirectly through changing the child's experience of disease, and by generating novel intrafamilial relationships that shape the sense of self. In this article I consider the plausibility and ethical implications of these proposed identity effects, but I focus instead on a third way in which identity may be affected, through the mediating influence of the wider social world on MRT effects on identity. By taking a narrative approach, and examining the nature and availability of identity narratives, I conclude that while neither direct genetic nor indirect experiential effects can be excluded, social responses to MRT are more likely to have a significant and potentially damaging influence on the generation of MRT children's narratives of identity. This conclusion carries some implications for the collective moral responsibility we hold to ensure that MRT, if implemented, are practised in ethically justifiable ways. (shrink)

ABSTRACT The part played by time in ethics is often taken for granted, yet time is essential to moral decision making. This paper looks at time in ethical decisions about having a genetic test. We use a patient‐centred approach, combining empirical research methods with normative ethical analysis to investigate the patients' experience of time in (i) prenatal testing of a foetus for a genetic condition, (ii) predictive or diagnostic testing for breast and colon cancer, or (iii) testing for Huntington's disease (...) (HD). We found that participants often manipulated their experience of time, either using a stepwise process of microdecisions to extend it or, under the time pressure of pregnancy, changing their temporal ‘depth of field’. We discuss the implications of these strategies for normative concepts of moral agency, and for clinical ethics. (shrink)

Philosophically grounded, methodologically sound, and theoretically rigorous, this paradigm-challenging collection ponders the most dynamic areas of feminist inquiry into bioethical thought and practice and sketches future directions for this rapidly growing field.

This paper is based on linked qualitative studies of the donation of human embryos to stem cell research carried out in the United Kingdom, Switzerland, and China. All three studies used semi-structured interview protocols to allow an in-depth examination of donors’ and non-donors’ rationales for their donation decisions, with the aim of gaining information on contextual and other factors that play a role in donor decisions and identifying how these relate to factors that are more usually included in evaluations made (...) by theoretical ethics. Our findings have implications for one factor that has previously been suggested as being of ethical concern: the role of gratitude. Our empirical work shows no evidence that interpersonal gratitude is an important factor, but it does support the existence of a solidarity-based desire to “give something back” to medical research. Thus, we use empirical data to expand and refine the conceptual basis of bioethically theorizing the IVF–stem cell interface. (shrink)

Kim Q. Hall, Feminist disability studies, Bloomington: Indiana University Press, 2011, reviewed by Jackie Leach Scully.

Solidarity between more and less vulnerable groups is fundamental to an effective public health response to a global pandemic. Yet in the case of COVID-19, a focus on deciding who can and who cannot be protected from harm has shaped the pandemic experience and continues to determine the post-pandemic trajectory of life with SARS-CoV-2. In this paper I discuss how this has affected our understanding and acceptance of solidarity.

In this paper I consider one effect that disablism has on social interactions between nondisabled and disabled people: the “hidden labor” carried out by disabled people to manage or manipulate the presentation of their impairment to others, and their own and others’ emotional responses, in order to achieve their goals. Although such management may be understood as actively enhancing the disabled person’s autonomous agency, I argue that the cost of this labor to the disabled person and the fact that it (...) must be hidden from the nondisabled partner in order to be effective, create an ethical problem. Such interactions confer a form of autonomy through a connection that is fundamentally distorted by asymmetries of power, knowledge, risk, and is therefore ethically undesirable. (shrink)

This is an English translation of one of Plato's least political dialogues of Socrates and Phaedrus discussing many themes: the art and practice of rhetoric, love, reincarnation, and the soul. It includes an introduction, notes, glossary, appendices, and an interpretive essay and introduction. Also included are rarely seen illustrations, stone carvings, and vase paintings. Focus Philosophical Library translations are close to and are non-interpretative of the original text, with the notes and a glossary intending to provide the reader with some (...) sense of the terms and the concepts as they were understood by Plato’s immediate audience. (shrink)

This study explores parents’ perspectives on expanded genomic testing in pregnancy and its implications for reproductive autonomy. We conducted four workshops using dialogue group methodology and involving thirty-three Australian parents with recent experience of pregnancy. Participants used a fictional scenario involving prenatal testing to reflect on their own experiences and views. Four interconnected themes were identified: barriers to autonomous testing and choice, the need for guidance and support through the decision-making process, the impact of stress and social expectations on reproductive (...) autonomy, and the importance of information to reproductive autonomy. Participants valued genomic information to help in decision-making and to give reassurance but struggled to comprehend the nature of the information that expanded testing could provide. They relied on trusted healthcare professionals to interpret the meaning of test results but recognized the reality of constraints on healthcare resources. Our findings show that reproductive autonomy in this context is both individual and relational and requires health systems that support values-based decision-making. In an era of expanding prenatal genomic testing, our study highlights the need for a framework for reproductive autonomy that goes beyond information provision, to provide the conditions necessary for genuinely autonomous decision-making. (shrink)

This paper explores two different theories of Church-State relations proposed by John Locke and Jacques Maritain, focusing specifically on their account of religious autonomy within secular, pluralistic societies. Locke, writing shortly after Europe's great religious conflicts, envisions a society in which the state is charged solely with guarding "civil," or temporal, interests, with churches treated as mere voluntary associations devoid of coercive power. In this framework, one of the state's principal goals would be to secure each citizen's right to pursue (...) their own conception of the good life, which would, in turn, grant the state authority to suppress religious viewpoints that might subvert this end. Maritain's theory, on the contrary, seeks to reconcile pluralistic democracy with the traditional teachings of the Catholic Church. He argues that the state, while retaining its secularity, should acknowledge the Church's sovereignty over spiritual and moral matters, pursuing cooperation with the Church to achieve the religious good of their citizens. As this paper argues, however, Maritain's position is untenable. His vision depends upon an impossible separation between the "temporal" and "spiritual" and overlooks their inevitable overlap. Locke, on the other hand, more accurately predicts the actual dynamics of Church-State relations in the Modern West. In examining this debate, we make progress toward answering two questions of fundamental importance to the issues of Church-State relations: what kind of status should spiritual entities enjoy in a democracy with no established religion? How should members of religious congregations, bound by specific moral dictates, participate in a political body composed of individuals of all faiths? (shrink)

This article is an attempt to bridge the gap between feminist structural explanations for rape and the social psychological mechanisms that make it possible for some men in patriarchal societies to feel neutral about sexual violence toward women. The concept of role taking is used to analyze the perceptions of self and victim held by 79 convicted rapists. Men who defined their behavior during sexual encounters as rape saw themselves from the perspective of their victim through reflexive role taking, had (...) inferred their victims' experience through synesic role taking, and used this awareness to further their plan of action. Men who did not define their behavior as rape did neither reflexive nor synesic role taking and appeared incapable of understanding the meaning of sexual violence to women. The majority of both groups did not experience role-taking emotions, that is, guilt, shame, or empathy, which symbolic interactionists posit are the mediators of self-control. I argue that the gender imbalance of power and the status of women as property are the social factors that render normative emotions inoperative in sexual violence. (shrink)

Current genetic intervention against disease and disability relies on prenatal genetic testing and the option of termination or on the expensive and demanding process of preimplantation genetic diagnosis. By contrast, gene editing promises to increase reproductive choice through therapeutic and restorative interventions that avoid the ethical issues of abortion or selection. Eventually, gene editing could effectively eradicate disability-linked genetic anomalies from the human genome. If it becomes possible to eradicate genetically influenced disability, would anything be lost, and if so, a (...) loss to whom or to what? This chapter considers the ethics of the control over biology offered by gene editing and the exercise of choice using that control in parental reproductive decisions. The discussion examines empirical data on the views of the UK public that offer an alternative perspective for bioethical thinking about reproductive autonomy, the exercise of choice, and the nature of good parenthood. (shrink)

Bioethics traditionally focuses on establishing moral limits between different types of acts. However, boundaries are established by communities and individuals who differ in the constraints shaping their moral world. Phase boundaries, the sites of transition between two physical phases such as a liquid and a gas, provide a metaphor for ‘drawing a line’ in bioethics discourse. Phase boundaries occur where the physical constraints allow both phases to coexist in stable equilibrium. This relationship can also be considered in reverse, using the (...) known position of the phase boundary to disclose the physical constraints. By analogy, instead of trying to locate the ‘correct’ moral boundary, the alternative perspective of ‘reverse ethics’ works from a commonly accepted boundary to examine the constraints of the moral world that are being used to establish it. Genetic interventions into the human body provide interesting examples of boundary establishment. In gene therapy, focusing on boundaries has resulted in a model of moral permissibility that ignores some alternative standpoints and increases the potential for conflict between them. Reverse ethics examines such conflicts in terms of the nature of the moral worlds that have come into contact with each other, taking seriously the diversity of factors governing the location of a boundary, in ways that might help shift some entrenched lines of conflict. (shrink)

The pandemic years have taught bioethicists a lot about the experience of working on an issue at the same time as being directly affected by it. Under normal circumstances, if we can remember what those were, we are very often thinking and writing about a situation of moral difficulty that we know, and can only know, as outsiders. We...

When I was a 7 months pregnant medical student, an attending surgeon asked me to which specialty I would be applying. When I replied that I was hoping to match in general surgery, he touched my pregnant abdomen and said, “Not with that you’re not.” I am not alone. Gender bias and discrimination have been shown to negatively impact women surgeons throughout their careers and deter women from even applying in surgical fields.1 Bias against female surgical trainees leads to less (...) operative autonomy and higher dropout rates.2 3 Once faculty, women surgeons are less likely to reach leadership roles.4 Recent studies confirm the author’s assertion that implicit biases create substantial harm. The author has undertaken an important study, conducting in-depth interviews with 46 women surgeons in Australia that identifies four distinct types of bias causing cumulative harm. In all four types of biases: (1) Workplace factors including leave policies and mentorship. (2) Epistemic injustices, or unfair assessments of women surgeons’ credibility by patients and colleagues. (3) Stereotyped expectations. (4) Objectification, implicit biases were seen. While many of the broad factors impeding women in surgery are well known, the author argues that these subtler factors, including both implicit bias and epistemic injustice, have a large impact. The …. (shrink)

We present, in various limits, analytical expressions for the center-of-mass wave function of a spin-1/2 atom as it is deflected by a Stern-Gerlach apparatus.

Two-classes of phase-space spin quasi-distribution functions are introduced and discussed. The first class of these distributions is based on the delta function construction. It is shown that such a construction can be carried out for an arbitrary spin s and an arbitrary ordering of the spin operators. The second class of the spin distributions is constructed with the help of the spin coherent states. The connection of the spin coherent states to the Stratonovich formalism is established and discussed. It is (...) shown that the c-number phase-space description of quantum fluctuations provides a simple statistical picture of quantum fluctuations of spinoperators in terms of random directions on a unit sphere. For quantum states of the spin system the statistics of these random orientations is given by non-positive spin quasi-distribution functions. It is shown that the application of these spin quasi-distribution functions to the Einstein-Podolsky-Rosen correlations provide an insight into the quantum theory of measurement. (shrink)

This issue of IJFAB is based on papers from the Eighth International Congress of Feminist Approaches to Bioethics (FAB), held in Rotterdam, the Netherlands, in June 2012. The biennial congress is now solidly established as a key feature of the bioethics landscape, and is an important factor in the continuing growth of feminist bioethics. From the first gathering in San Francisco in 1996, FAB congresses have developed a reputation as lively, welcoming, challenging, and intellectually vibrant events that make a particular (...) effort to include the work of junior and emerging scholars in the field.Both the theme of the congress, Generations: Imagining the Future to Promote Health and Justice, and that open tradition of.. (shrink)

The Donchin and Holmes Emerging Scholar Prize was established in 2016 on the occasion of the twentieth anniversary of the founding of the International Network on Feminist Approaches to Bioethics. The name of the prize honors the two cofounders of FAB, Anne Donchin and Helen Bequaert Holmes. Anne was Professor Emerita of Philosophy at Indiana University at the time of her death in 2014, and she had recruited Becky Holmes, a biologist and independent women’s studies scholar, to help set up (...) the first international network of feminists writing and researching in areas related to bioethics.Both Anne and Becky were strongly committed to what now tends to be called “building capacity”: a rather ugly description... (shrink)

Race, Crime, and the Law. Randall Kennedy. New York: Vintage Books/Random House, 1997, xiv + 539 pp.

In the present paper we expand upon ideas published some time ago in connection with which path detectors based on the micromaser. Frequently questions arise concerning the time ordering of detection and eraser events. We here show, by a detailed and careful analysis of a quantum eraser experimental setup, that the experimenter can choose to ascertain particle-like which path information or wavelike interference information even after the atom has hit the screen.

This narrative symposium examines the relationship of bioethics practice to personal experiences of illness. A call for stories was developed by Tod Chambers, the symposium editor, and editorial staff and was sent to several commonly used bioethics listservs and posted on the Narrative Inquiry in Bioethics website. The call asked authors to relate a personal story of being ill or caring for a person who is ill, and to describe how this affected how they think about bioethical questions and the (...) practice of medicine. Eighteen individuals were invited to submit full stories based on review of their proposals. Twelve stories are published in this symposium, and six supplemental stories are published online only through Project MUSE. Authors explore themes of vulnerability, suffering, communication, voluntariness, cultural barriers, and flaws in local healthcare systems through stories about their own illnesses or about caring for children, partners, parents and grandparents. Commentary articles by Arthur Frank, Bradley Lewis, and Carol Taylor follow the collection of personal narratives. (shrink)

This chapter examines the early insular history of Bede's Chronica Maiora in a universal context. It considers Bede's treatment of salvation history in the Chronica Maiora's account of the archipelago in the era of the Roman conquest and the barbarian invasions, viewed within the context of contemporary world history. The chapter explains that the Chronica Maiora is located in Bede's magisterial survey of divine and human time and traces the providential unfolding of universal history through the six ages of this (...) world. (shrink)

ABSTRACT The advent of genetic technologies and of genetic explanations for biomedical phenomena has major implications for disability. They raise the fundamental question of our valuation of variations in human embodiment. In this paper I suggest that the lived experience of a specific embodiment affects the structures of imagination and interpretation that people use in moral perception and evaluation. As an example, I consider recent 'deaf designer baby' cases, suggesting that it is not possible to understand the ethics of the (...) choices made without acknowledging significant differences in embodied experience. To understand embodiment fully means allowing the body itself to take us into unfamiliar territory, including experiences of limitation and difference. I argue that true justice for disabled people will demand insight into different lived experiences and an openness to what other corporeal modes have to teach us. (shrink)

In this multi-disciplinary collection, we ask the question, 'What did, and do, Quakers think about good and evil?' There are no simple or straightforwardly uniform answers to this, but in this collection, we draw together contributions that for the first time look at historical and contemporary Quakerdom's approach to the ethical and theological problem of evil and good. Within Quakerism can be found Liberal, Conservative, and Evangelical forms. This book uncovers the complex development of metaethical thought by a religious group (...) that has evolved with an unusual degree of diversity. In doing so, it also points beyond the boundaries of the Religious Society of Friends to engage with the spectrum of thinking in the wider religious world. (shrink)