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 Today does not need to be a trigeminal neuralgia day. It really doesn't.

Where is it happening? It's on the right side this time. 

How bad is it? Three instances so far, so I am braced for more, since that's usually how it goes. Wait, four. And it's not super-bad, just the little dungeon map of tiny passages filled with pain, leading outward and upward from my right upper jaw. Much of the upper cheek is involved, with what feel like lines curving downward from the outer right eye, and this time it's also doing the Monocle of Pain trick, where my eye is ringed in a weird hybrid sensation of ache/pain/coldness/tightness/tickling. That last bit is even more annoying than it sounds. 

What set it off this time? Temperature differential (cold). One accidental touch of cold against the right spot was all it took.


We shall see. Meanwhile I am going off to look again at the pattern of the trigeminal nerve in the face, so as to check whether the stuff on the cheek and the lines from the outer corner of the eye match where the nerves are.

Got a decent rest since the last wave, so maybe it will get bored and wander off.

Silly body.

Anybody else deal with this nonsense? Several people in my family have. 
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 I saw my GP yesterday for a physical and labs. They were holding my prescriptions hostage until I appeared in person, so I went in.(1)

There were some good things in the labs. My cholesterol measurements are glorious, which is really nice.(2) A lot of other things either are fine or mostly fine.

The things that are not fine will necessitate action. I'm not thrilled, but I will figure out how to deal with them. 

This is what's up. There won't be a quiz, and you can skip it if you like. But if you were wondering, here it is. )
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 Am recuperating after Monday's Thing. I think things are going well, in general. There's a lot of sleeping involved in recuperation right now, and apparently my body has decided to flip day for night, as of yesterday. This is not as convenient as it might be, but we work with what we have.

Silly body. Keep getting better, silly body. Have all the sleep you need. (And please return to the schedule that mostly works, yah?)

Thank. you all for your good wishes.


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There is only one durian custard cake left. Hmpf. Should have gotten more. Might need to do something about that.

I'm late posting this because I took a little time for reading, and fell into the story and forgot about time. Since it's beta reading, that's a very good sign that the writer's doing things that work. This is a story by Celia Lake. Have any of you read any of her things? I love them very much.

The first thing I did today was unsnarled a minor bureaucratic situation, which involved talking to people by phone twice, with a brief break in between in order to set up an account with FedEx, which I was told to do by the situation-unsnarlers. These things may sound like small things, but for a person with ADHD, fibromyalgia brainfog, anxiety, and also PTSD, stuff like this can loom over one enough to totally freeze a person. So getting through that fairly easily, first thing, is a huge wiktory.

Also I got a few new things photographed and into the Etsy shop, and other things have been marked down. (Still so much slower getting things into the shop that I hoped, but something is better than nothing.)

Now if my silly body would let up with the mildly ominous pain, I could go merrily on with the regular pain. the stuff I am used to. Oy, bodies.

Today's perfume is Nocturne Alchemy's Ra's Amber Sandalwood, which is good in a fairly straightforward "does what it says on the tin" way.

Have you fallen into a story lately and lost track of outside things? Are there authors whose work you are tremendously fond of these days?
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Two days vanished, there. Part of it is that my body insists on sleeping until 3 or 4 p.m., and part of it was that on the 13th, I got to the workbench and was too happy there to leave in time to post, and then I lost the notion of posting. Lost it in the fog. No, I don't have Long Covid; I have my own witch's brew of brain fog and related fun courtesy of fibromyalgia, ADHD, C-PTSD, and being a stroke survivor. Plus maybe the six decades of wear and tear on the organism has something to do with it too. In any case, I didn't write anything down here.

The time at the workbench on the 13th really was good. A piece that got inspired by a photograph of a flower got almost done, and I worked on selecting some opals for a Thing that Needs Doing.

Today, then, was a combo of silly body foolishness and continuing recuperation, plus repeatedly checking on whether a thing I need is going to work out. Plus more silly body foolishness. And now, which I am still counting as the 14th because I have not gone to bed yet, I am about to start an experiment.

For the rest of the month, I am going to sleep when I am sleepy and work when I am not sleepy. No more wrenching my sleep schedule around to try to get it to match some notion of ideal. I will have to set alarms for meetings and so forth. And I need to order that bedthumper alarm thing ASAP.
[fx: a cricket considers chirping. Time passes.]
OK, bedthumper alarm ordered. We shall see if it works on someone with my level of hearing. (I am moderately hearing impaired according to the audiology people who measured me. Haven't had it checked lately, but I mostly still can't hear the same stuff I usually can't hear.)

OK, where were we? So many things to do, and not enough good wake time and good sleep time, so we will see if this experiment is better or worse.

How's your sleep lately?
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Silly body continues silly. Hurting back ate my day. And yet, I managed to get filters ordered finally, and some magnetic clasps for someone who needs them, so that's something. Also had zoom tea (or whichever the meeting method we found that finally worked) and passed along some tidbits of musing on historical things I had been watching/reading that turned out to be possibly very useful to the person to whom they were given. Being useful makes me happy.

No workbench, though. Silly body. Tomorrow I will try again. Now, though, gotta be sleep. I set out to go to sleep two hours ago, but then last minute thoughts distracted me (see above for things that got ordered) and so here we are, not yet snoozing. But I go, I go!

How's your sleep been?
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Birthday Month Day 10 is lost because back pain absconded with it.

Hmpf.
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My back pain was bad enough to keep me from sleeping last night, so I napped a lot today. This can leave a person feeling discombobulated and a little bit unstuck in time. Yet in my naps I think I got some good sleep, at least a little, and I managed to take care of a paperwork thing while awake, and also have a good e-visit with my mother-in-law (aka my mother outlaw), which is always good. I made her laugh with delight by describing some of the excellent model aircraft videos Juan has been showing me.

I should go figure out what today's perfume is. Be right back!
[fx: grasshopper sits on bent blade of grass; time passes]
Sacred Kyphi from Nocturne Alchemy's 3rd anniversary it is, bottle 26 of 69. (It originally came with a box of resins with which to make one's own kyphi. I believe the box has gone to [personal profile] kiya who seemed more likely to do something fun with it.)

My current ambition: breakfast. Which will show you how discombobulated my day is, time-wise.
My further ambition: workbench, please please please. Need workbench time, which improves everything almost always.
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Silly body.

Perfume for the day was BPAL's Lyonesse, but either it was fugitive or I was distracted or both. There was a faint sillage of a rather nice amber, but I'm not sure if that was the Lyonesse or some other fragrance oil that got spilled on a scarf.

No workbench, because back ow ow ow. My Chirp wheel was employed, and it helped some, but my back made sleeping last night (the night of the 8th) impossible, and apparently I totally forgot to post. (Unless there's a partial post in one of these tabs somewhere.) Anyway, that's how yesterday, the 8th, went, as near as I can remember, so here is a post.
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Last night I couldn't sleep for a bit because of my back. It turned out that if I got up, it did not hurt as much, so I got up and finished the eBay invoices for my people. Today I will pack those things if my back permits; it's somewhat better and I am cautiously optimistic.

Oh, forgot to say that yesterday's scent was Champagne Cosmopolitan from Haus of Gloi, which was nice but fugitive. Today's is Sexe du Sucre from Cobalt Blends, which is intense but I like it. (There was a thing for "sugar" perfumes a while back, and apparently I am their target market.)

Are there scents (whether perfumes or not) that you like a lot?
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Apparently I did something to inconvenience my back yesterday. It was hurting when I woke up, and hurting more throughout the day.

It's slowing me down, but I do have hopes of carrying the clean sheets up from the dryer, and also getting to the workbench.

(Edited to add: My back doesn't get upset with me like this very often, which is probably why I don't remember to try the Chirp wheels on it. I used the medium one and then the smallest one, rolling over them and working on relaxing my back and letting it drape over the wheel in an arch. One or two times with each wheel, and the pain is remarkably lessened. It may start up again later, but the temporary relief is a big help, and I think it usually doesn't hurt as much even if it starts up again later. Those things are freakin' magic as far as I am concerned.)

(Edited later to add: it did start up again. I hope it eases off while I sleep.)

(Edited even later to add: well, it did not ease off, so I stood up to get a glass of water and it hurt a lot less when I was standing than it had when I was lying down, and sitting seemed better too, so I have been up for a while longer and all my eBay buyers have gotten their invoices now, which they will be happy about. It's tempting to go up to the workbench and just work for a while, but although it is the cool of the night, the AQI isn't really good enough for me to open the windows and circulate air and bring the temperature down. I will have Extreme Filtering up there soon, which should solve a lot of problems, but I have not yet remembered to order the filters. And now I'm actually feeling a little sleepy, so I'm going to aim for bed and sleep. Tomorrow will involve the packing of many boxes and the photographing of many new pieces for Etsy with markdowns on older work to match. Fingers crossed for cooperative body stuff.)


Is something slowing you down today, with or without ouch?

(Edited to add: And is there something that helps, even a little?)

Edited again to add: And are you up in the middle of your night too?)
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So to tell you about today's happiness I need to start back in 2006.

In 2006, my health crashed. In particular, a really distressing medical condition took my voice away for some weeks, and then I had about a year of vocal therapy to regain the ability to speak and sing (a little) again.

I used to sing a lot. All the time, if I could. When I was a little kid, according to my mother she knew that I was awake because the singing started which meant the little bird was awake.

Losing my voice was really hard and traumatic, even on top of the other hard and traumatic things going on. I lost my voice around three weeks after my partner Mike died. His memorial service here was a month after his death, and I could not speak a word at it, nor sing with people at the what-became-a-wake afterwards. (More than my voice got lost, too; my body crashed in ways that I'm still dealing with.)

Working with the voice therapists was helpful. After about a year, I could speak just fine. I could sing five notes.

Five notes is not an awful lot of range for somebody who was a bird as a child.

I started taking voice lessons in 2020 because I wanted to increase my breathing capacity so as to increase my odds of surviving COVID if I caught it. Previously, I had about 2/3 of what my care team would like me to have as a baseline. It was called "diminished lung capacity." Singing involves breathing, learning to breath better and more effectively and all that, and that might help my lungs, I reasoned. And it did. After a while, I had improved my lung capacity enough that I hit "what they wanted me to have" a significant portion of the time. This was great.

I had more notes I could sing, too. Which was also great.

My vocal cords had a lot of atrophy to deal with. That's not always easy work, especially for a person in their sixties.

Today in my voice lesson I had more than five notes to play with. Today I have thirty-six notes to play with. What I don't have is words to tell you how wonderful this is.

Guess I'll just have to sing my gladness.
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Went back to the eye doc the day before yesterday for followup on the scary thing. All healed up. Yay!

Whew. I was more worried than I was letting on, and it's really good to get this good news.
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The sudden appearance of a surprising new thing in one's vision warrants investigation.

Summary: my eye should recover with a minimum of fuss. Yay, good outcome. )

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Elise Matthesen

June 2026

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