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The crushing weight of 2 manageable tasks

@celsius451

Hi, I'm Celsius ♡ 22 yrs old ♡ he/they ♡ aro/ace ♡ level 2 autism ♡ nonverbal ♡ mentally ill ♡ physically disabled ♡ medium support needs ♡ Yes I stole my blog title from a tweet, dw about it

fuck it I will make this my Disability Pride Month Request: if you are able-bodied, or just unfamiliar, look up the prices of things. Look up what life-sustaining medication costs, look up what good manual¹ and any power wheelchairs cost, look up what corrective surgery and accessible vehicles and home meal delivery services and service dog training and special dietary restriction food costs. and look up how much money is available for people who can't work.

how many months of government support does it take to afford something like a power wheelchair if you're someone who needs one to get out of bed? how much expense is incurred while saving up for that, making sure you still get food, cleaning, other appointments while you're saving up? is it enough to pay rent? is it enough to still have nice meals, streaming subscriptions, a new video game? is it enough to help family or friends cover emergencies? are there resources available to help with dating, girl's nights, family events if you can't do it all yourself? how in demand are those services, how far in advance do they have to be reserved, how much do they cost?

I've had a few posts about disability get relatively well-shared at this point, and there's always an element of surprise in it - like, what do you mean there's subscriptions, what do you mean it's that expensive, isn't there something else? - and while I understand why, it would really mean a lot if people who don't know about this stuff took the initiative to find out just how bad some of this shit is on their own time

¹ and not just the folding ones on Amazon, which are still expensive, but which I can say from experience are also really uncomfortable and not suited for full time use

Look up cost of dedicated AAC devices too!!

And then look up the cost of a newer gen ipad.

And then also look up the cost of robust AAC software and add that to the cost of either device!!

It isn't a one-time purchase either btw.

The devices have planned obsolescence (which is why you want to go for the newer gens).

And some apps only support a subscription.

And the ones that don't, if you get a new device, you often need to repurchase the app.

I rely on this to ask for help in emergencies btw.

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Reblogged

This is my new task reward chart

It arived yesterday

I named the caterpillar Henry

Henry helps me do tasks now

His lore is that he likes being sparkly

But his sparkles don't last forever

Earning stars helps him get his sparkles back ✨️

I did the dishes today

They were left in the sink so long that i had to throw one away for being moldy

But now theyre all done

I get to buy something for $10 now

Update:

idk what to get for $10

Is too much choice

I was going to do pizza, but I can't really have it cause of my hernia + I live by myself so most would be throw away after a few days

I neec to reinforce the chart though

This is my new task reward chart

It arived yesterday

I named the caterpillar Henry

Henry helps me do tasks now

His lore is that he likes being sparkly

But his sparkles don't last forever

Earning stars helps him get his sparkles back ✨️

I did the dishes today

They were left in the sink so long that i had to throw one away for being moldy

But now theyre all done

I get to buy something for $10 now

Avatar
Reblogged

Underappreciated disability aids!

- Stools/chairs - I use a stool to sit down in the kitchen because I can't stand for long periods, also shower stools/chairs that allow people sit down to shower

- Grab bars & rails - Help someone stand up/sit down or keep their balance as they walk

- Glasses - Heaps of people need glasses but people forget that they are an aid

- Grab sticks - Help people pick things up off the ground if they can't bend over

- Banana/sliding boards - Help people transfer between surfaces by sliding

- Hoist systems - Help people transfer between surfaces by being lifted and moved

- Adaptive grip tools - Help people with issues gripping to grab onto various items. These include adaptive grips for utensils, cups, stationary etc.

- Compression wear - Socks, gloves, stockings etc that provide compression to reduce various things including blood pooling, lymphoedema, pain etc.

Please add on other disability aids that deserve more awareness and appreciation!

- Sensory tools - weighted vests and blankets, chewlery, fidgets and visual stimming tools, etc.

- AAC equipment - letter boards, speech generating devices, symbol boards, PODD books, etc.

- Visual aids - picture stories, visual instructions, story books with visual supports

- (K)AFOs!! - Orthotic braces that help correct gait and prevent injury (most seen and talked about in the context of strokes, cerebral palsy, and other neurological disabilities, but is used for so much more)

- gait trainers - used to also assist in posture and gait, and is also mostly heard of with cerebral palsy despite being used for lots of things