Praise then darkness, and creation unfinished

I realized over the weekend that I hadn't checked on those insurance/medical specialist referrals, and when I did check, they were all sitting in MyChart, but hadn't been sent to the insurance company. The insurance chat agent was able to tell me that yes, they need to be in their system, and gave me a fax number to give my GP's office. So I called this morning (yesterday having been a holiday) and asked my doctor's office to do that, urgently, because I'm seeing Dr. Awad tomorrow.

When nothing had happened by midday, Adrian suggested I call the insurance company and ask whether it would be OK if they received the referral after the appointment, on the theory that this probably happens a lot. So I called, and they said yes it would, so I'm going to cross my fingers, and didn't call to reschedule that appointment.

I also finally managed to talk to my Fidelity advisor, and set up a three-way call with him and BNY (where the inherited IRA is). That involved a lot of waiting on hold, and the agent saying he needed to check one more thing.... He then told me that it would take more time for them to figure out where that unexpected balance came from, and they had to figure that out before they could transfer the money. No, I don't know why: the balance information is from their system. So someone is supposed to call me back, hopefully soon, and then I hope they will either transfer the money to Fidelity, or be willing to send me a check for the balance and close the account.

It took me a little while to figure out why I was feeling worn out, but at least part of it is that I made multiple phone calls, and everything is still in process, if not in limbo. A bowl of Lizzy's "chocolate orgy" ice cream helped some.

On top of everything else, my gum is bothering me again ("again" because it's a problem for a day or two, then it's fine for a while, and then recurs).

In no particular order:

*Last night, I talked with cattitude and adrian_turtle about possible text for my mother's gravestone. I emailed this to my brother today, with a note that these were what I was thinking of.

*I went to TJ Maxx to look for slippers. Disappointingly, there were none that came close to fitting: the ones that might have been in my size were all significantly too tight across the top of my foot. I was wearing thin socks (specifically, lightweight compression socks). It continues to be annoying that not buying slippers (for example) is as tiring as buying some.

*Also, my hips started hurting while I was in the store, so I decided not to look for other things, but headed home with only a quick stop at CVS, and not a grocery store.

*Today was definitely a good day to be outside; yesterday wasn't particularly, and tomorrow is likely to be a lot colder than today (with an afternoon high a little below freezing, so not horrible for January in Boston).

*I got email today from state senator Pat Jehlen, about a bill to ban the use of masks by law enforcement. This is noteworthy because I haven't lived in her district since 2019, and didn't think I was still on her mailing list.

*The skin on my fingertips, and on the rest of my hands, is doing a lot better. I will need to remember to keep applying the serious lotion, so it doesn't start splitting again. However, my shoulder is bothering me, which may be from doing a lot of mousing when I was avoiding using the keyboard.

I went to my doctor today, for an annual physical and so she could write the next Ritalin prescription.

So: I had a fasting blood test last month, and the glucose number was high enough that she is ordering a re-test and an A1C test, which means another morning trip to Somerville on an empty stomach. My "bad" cholesterol is high, but not high enough for her to be prescribing statins right now. My "good" cholesterol is also high, but apparently that's less protective in older patients, and I'm approaching that age.

I also asked her to look at my calves, because I frequently have swelling by the end of the day, especially in the left calf. She said it sounded like a vascular issue, then measured the circumference of both my calves. The left calf is noticeably bigger, which supports the idea that there's some kind of vascular issue.

What I'm supposed to do for that is try to reduce my sodium intake, and try wearing compression socks for at least a little while each day. Reducing sodium intake means I'll be looking at ingredient labels for quantities--right now, I'm mostly checking to make sure that various things don't contain any of the various things that we know that one of the three of us needs to avoid.

Carmen also did a breast exam (no longer part of the standard physical exam, but she asked if I still wanted one, and I said yes), and looked at my back for any suspicious moles or freckles. Also, before the appointment they asked if I was OK having them check height and weight, and I said yes, then asked the assistant how tall I now am. Five feet two inches, confirming what I think is what the neurologist's office said, which is an inch or so less than when I was 30.

( grumbling about paperwork and MyChart )

I just had a reassuringly boring dental visit. I called yesterday because I'd been having pain on and off for the previous three days, and they gave me an appointment for this morning.

I felt much better last night and basically OK this morning, but I still wanted the dentist to check in case there was a problem—intermittent symptoms can be hard to diagnose. The dentist looked inside my mouth, poked in a few places, and took two X-rays, finding nothing wrong. His best guess is that something was caught between my gum and bone, and I got it out by cleaning my teeth yesterday; I don’t know why the previous three days of brushing and flossing hadn’t done the job.

The dentist did see a little tenderness in the area that had been hurting, and wrote me a prescription for something to rinse with. Other than that, call if there are further problems, or come back in three months for my usual cleaning.

I am pleased with the outcome: it stopped hurting, and the dentist confirmed that there's nothing wrong, so I don’t need unpleasant and possibly expensive dental work.

The dentist said to hold the prescription rinse in my mouth for “a few seconds,” then rinse with water, and I only need to rinse that side of the month. The printed prescription label says 30 seconds and not to rinse for 30 minutes afterwards, which I assume are the standard instructions for this medication.

The three of us went out to the No Kings Yaas Queens combined Pride/NoKings demonstration today, despite my worries about my various joints. Or, at least, that was the plan. It didn't work out, but my knees, hips, and ankles are OK.

We got to Park Street and the Common, and found other people who were looking for the same event, a stage where someone was introducing the next speaker?performer?, and some tables and tents, but no focus. We wound up walking to the side of the Common next to the Public Garden, where we found the parade, smaller than we'd expected but with enough of a crowd I couldn't see much. So we went home, pausing moderately often to rest my joints and watch another bit of parade, which seems to have been heading for Government Center as originally planned, not the Common as we thought.

I'm both glad I went, and disappointed that I didn't actually make it to the first protest or rally I've felt physically capable of in too long.

I will probably update this tomorrow, to note how my joints are feeling. This afternoon, they've felt good enough for some PT exercises.

My right knee is healing, and stretching worked significantly better than yesterday. I even did a few carefully selected PT exercises this afternoon.

I can do more things standing up, and walking around the apartment is easier. However, I seem to have been leaning too much on the other leg, because my left knee started to hurt earlier. Not badly, but enough that I am putting the cane aside for the moment.

update Monday, 6/9: my knees feel mostly OK today. I am still being careful about walking a lot or standing too long. I just got the mail, figuring the two steps down to the mailboxes would be a useful check of how I'm doing. It was doable, but did hurt a little; I'm glad I decided not to go out. (The sidewalk is down another half dozen stairs, which are a bit more difficult than the ones inside, but the main thing is that this way I only had to climb back up two stairs.)

I heard from the GI doctor's office this morning, and have an appointment Friday at 10:30, which will be telemedicine. I hope my knees will be feeling a lot better by then, but if she had wanted to see me in person, I would have called a lyft and taken the quad cane with me just in case.

Two minor amusing things from a trip downtown this morning:

I saw (and rode) one of the googly-eyed trolleys for the first time.

And on the way back, an ad in a subway car for some AI thing. The headline is something like "offload the busy work." The steps given below that are "AI drafts brief" and "brief accepted." Almost anything would have been a better example, after repeated news stories about lawyers getting in trouble for submitting impressively flawed AI-drafted legal briefs.

The trip was to try on sandals at the Clark's store. There was one that was slightly two big, so I have ordered a pair in my usual style, to be delivered to the store, so I can try them on there and return them if they don't fit.

I stopped to grab some lunch at the Quincy Market food court, and then wrenched my knee while sitting down on some stairs in order to eat it. The trip home was not fun, but I came home, sat down for a couple of minutes, then got out last fall's cane and went into the kitchen to make tea.

I just had a telemedicine appointment with the gastroenterologist. Her office called at about 9:30 this morning, to ask if I was available for a 10:30 appointment, and I said yes.

The diagnosis is collagenous colitis, which I already knew from MyChart. The good news is that it's both benign and curable. The treatment will be nine weeks of budosenide pills, starting at three/day for the first six weeks, then two/day for the next three weeks, and a final three weeks of one/day. Those are to be taken with food, and in the morning because it's related to steroids and can interfere with sleep. [I mis-remembered, it's a total of 12 weeks of these pills.]

The most common risk factors for this kind of colitis are being a woman over sixty, and regular use of NSAIDs. Therefore, Dr. Morgan wants me to talk to Carmen about whether there's a plausible alternative to me taking naproxen almost every day, but she did say there may not be, since tylenol doesn't work the same way and may not be effective for the hip and knee pain I'm using it for.

I asked about continuing the Imodium and the fiber capsules, and Dr. Morgan said I could stop using them when the budosenide starts to be effective for the diarrhea, which might be within a week. I told her that the combination of Imodium and fiber is working well enough that I may not notice a difference, so the tentative plan is to wait at least a week, then pick a day or two when I won't need to go out, and try stopping the Imodium. (Adrian pointed out that I'm currently taking two pills twice a day, so I could try halving the dose and see how I feel. That sounds plausible, but I'm going to ask Dr Morgan if she thinks that's worth doing.

Also, a significant number of people with collagenous colitis also have celiac, so she wants to test me for that. I asked, and it's a straightforward blood draw, which I can do at my convenience: I don't need to wait until after getting blood drawn to start on the new medication.

She is sending the prescription to CVS, and told me to call her office if there's any problem with the insurance company.

ETA: I looked at the doctor's visit notes on MyChart, which reminded me that I should be checking my blood pressure about once a week while taking the budosenide.

A day or two ago, I was reminding myself that there's no wrong way to feel, no "proper" shape of grief. Today, well, I'm feeling calmer than I had been: not cheerful, but I really wouldn't expect to me. Even if I wasn't mourning, I still have the assortment of health issues, one of them depression, and the state of the world continues to feel dire.

In response to my post about Mom's death, one of my high school friends expressed sympathy and said that she remembered that my mother was always kind. This seems worth noting because Dawn hadn't seen my mother in at least 40 years.

We took the cats to the vet for their annual checkup today: the vet did a basic physical exam, and drew blood for tests. They have improved the feline rabies vaccine, and it's now good for three years. So, having had the vaccine a bit over a year ago, they're fine for a while. Kaja's teeth continue to be a problem, and they're probably going to have to extract at least three. Kaja's bloodwork is necessary before they do that, and Molly's is just in case, because we're pay for annual memberships for both cats, which cover routine bloodwork, among other things.

I'm seeing my neurologist on Monday, for what I hope will be a routine appointment, and will be having a colonoscopy on Thursday. That will involve a couple of days of a low-fiber diet, followed by one day of clear liquids only, and then a strong laxative that they call the colonoscopy prep. They gave me an afternoon appointment, which I think means I can get a few hours sleep Wednesday night, then get up in the middle of the night to drink that stuff, rather than expecting to be up all night.

This feels like a busy week, in part because we had to reschedule the trip to the vet. (We've only been home from London for a week.) I'm sleeping surprisingly well, going to bed, turning the light out almost immediately and falling asleep quickly, rather than reading for at least half an hour and then lying awake a while after I turn the light out.

Apparently the reason I hadn't heard from either her or my brother yesterday is that she fainted, went to the emergency room instead of her doctor's office, and then waited hours to be seen.

A CT scan found lung cancer, in both lungs. They're still waiting to talk to an oncologist, and my brother is on his way to London now. The three of us will be going to London in a few days, possibly as soon as Thursday, or maybe Saturday. My brother has a long layover in Charlotte, and is going to spend part of it looking at airline tickets for us, possibly using my mother's frequent flier miles for one or more tickets.

I spent some time this morning looking up travel-related things that we may not need, but will do no harm, and wondering about Oyster cards is better than doomscrolling. I also called my doctor's office and asked whether there were limits on where the patient can be for a telemedicine appointment. The receptionist said she thought that technically, I have to be in Massachusetts; we agreed that I can call back if I need to postpone that.

My gut was bothering me earlier, which is almost certainly from anxiety, but still has me a little nervous about this trip. (It's been just over a week since I saw the GI doctor.)