Results for 'data curation'

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  1.  58
    Data curation-research: practices of data standardization and exploration in a precision medicine database.Niccolò Tempini - 2021 - New Genetics and Society 40 (1):73-94.
    Key to precision medicine is the development of expert database projects that gather data, integrate them in the pre-existing database, and publish the product of their processing for others to make use of. Increasingly, it is required that data infrastructure managers and curators pursue and lead research projects on the data so as to learn about new ways data could be used or information that could be potentially generated from them. I call these efforts “data (...)
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  2. Prediction and data curation in digital humanitarianism.Nimesh Dhungana & Gianluca Iazzolino - 2025 - Big Data and Society 12 (3).
    Our article contributes to debates on critical humanitarianism and critical dataset studies by examining the praxis of digital humanitarianism and the entanglement between what we know and how we know human suffering in large-scale disasters. We specifically focus on the “data work” carried out by various professionals in creating and curating datasets used by humanitarian actors to address both current and future crises. In doing so, we explore how these actors make sense of the development, maintenance and (re)use of (...)
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  3. Prediction and data curation in digital humanitarianism.Nimesh Dhungana & Gianluca Iazzolino - 2025 - Big Data and Society 12 (3).
    Our article contributes to debates on critical humanitarianism and critical dataset studies by examining the praxis of digital humanitarianism and the entanglement between what we know and how we know human suffering in large-scale disasters. We specifically focus on the “data work” carried out by various professionals in creating and curating datasets used by humanitarian actors to address both current and future crises. In doing so, we explore how these actors make sense of the development, maintenance and (re)use of (...)
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  4.  25
    Bio-Ontologies, Epistemic Diversity, and Epistemic Justice: Data Curation and the Case Against ‘Excellence’.Sarah R. Davies - forthcoming - Minerva:1-23.
    The notion of ‘excellence’ has become the key logic structuring academic funding and evaluation. This essay offers a critique of this policy logic by examining the case of biocuration, an area of academic scholarship that is ‘non-excellent’ (according to this notion’s operationalisation) but that has, I argue, profound epistemic significance. I develop my argument in a number of steps. I first characterise excellence regimes by examining how excellence is operationalised within them, before discussing epistemic diversity and injustice, and how these (...)
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  5. Environmental data as a relational mediator of contentious publicness: Data curation and environmental data activism.Yu Sun - 2026 - Big Data and Society 13 (2).
    This study focuses on the grassroots data practices of an environmental non-government organization (ENGO), examining the constitutive role of data in environmental activism in China. Drawing on the concept of contentious publicness, it analyses the processual and relational dynamics of the ENGO-led data activism to tackle environmental pollution at the interrelated material, spatial and temporal levels. Through participatory observations and in-depth interviews, it first examines the material agency of data infrastructure in enabling environmental participation. Then, it (...)
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  6.  56
    Everyday curation? Attending to data, records and record keeping in the practices of self-monitoring.Rosalind Williams, Flis Henwood, Catherine Will & Kate Weiner - 2020 - Big Data and Society 7 (1).
    This paper is concerned with everyday data practices, considering how people record data produced through self-monitoring. The analysis unpacks the relationships between taking a measure, and making and reviewing records. The paper is based on an interview study with people who monitor their blood pressure and/or body mass index/weight. Animated by discussions of ‘data power’ which are, in part, predicated on the flow and aggregation of data, we aim to extend important work concerning the everyday constitution (...)
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  7.  49
    Data analysis and network visualisation as tools for curating hybrid correspondence archives.Callum McKean & Cameron Randall - 2025 - AI and Society 40 (6):4323-4340.
    The Harold Pinter Archive at the British Library contains correspondence dating from 1977 to 2008, including his e-mail archive. In total, the correspondence strand of the archive contains c.20,000 paper letters and c.3500 e-mails. This project used data analytics (in Python) and network visualisation (in Gephi) to interrogate the ways in which digital and analogue correspondence function together within Pinter’s literary archive. The attendant paper reflects upon what this analysis might mean for archivists, curators and researchers working with hybrid (...)
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  8.  39
    In the mood of data and measurements: experiments as affirmative critique, or how to curate academic value with care.Katja Brøgger & Dorthe Staunæs - 2020 - Feminist Theory 21 (4):429-445.
    The technologies used to govern performance at universities consist of monitoring and comparative instruments. They are designed to affect and direct behaviour. In these academic environments of exposure, comparison and self-monitoring are deeply entangled with a vulnerable affective economy. This article explores how these data may affect our moods and how academic value could be curated by other means and with care. Drawing on feminist new materialist thinking and speculative feminist storytelling, the article takes this picture of the actual (...)
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  9. Emergency curation as anticipatory maintenance: Lessons from the 2016/2017 data rescue movement.Laura Rothfritz - 2026 - Big Data and Society 13 (1).
    This article examines how volunteers involved in the Data Rescue movement navigated concerns about the stability and stewardship of federal environmental data following the 2016 U.S. presidential election. Drawing on 16 in-depth interviews, the study explores how participants interpreted infrastructural fragility not simply as a technical risk, but as a relational and political concern rooted in shifting institutional commitments. The analysis introduces the concept of anticipatory maintenance to describe how volunteers responded to perceived threats by developing redundant, decentralized (...)
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  10.  81
    Archival strategies for contemporary collecting in a world of big data: Challenges and opportunities with curating the UK web archive.Helena Byrne & Nicola Jayne Bingham - 2021 - Big Data and Society 8 (1).
    In this contribution, we will discuss the opportunities and challenges arising from memory institutions' need to redefine their archival strategies for contemporary collecting in a world of big data. We will reflect on this topic by critically examining the case study of the UK Web Archive, which is made up of the six UK Legal Deposit Libraries: the British Library, National Library of Scotland, National Library of Wales, Bodleian Libraries Oxford, Cambridge University Library and Trinity College Dublin. The UK (...)
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  11.  45
    The Role of the Curator in Modern Hospitals: A Transcontinental Perspective.Hilary Moss & Desmond O’Neill - 2019 - Journal of Medical Humanities 40 (1):85-100.
    This paper explores the role of the curator in hospitals. The arts play a significant role in every society; however, recent studies indicate a neglect of the aesthetic environment of healthcare. This international study explores the complex role of the curator in modern hospitals. Semi-structured interviews were conducted with ten arts specialists in hospitals across five countries and three continents for a qualitative, phenomenological study. Five themes arose from the data: Patient involvement and influence on the arts programme in (...)
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  12.  38
    PsyCuraDat: Designing a User-Oriented Curation Standard for Behavioral Psychological Research Data.Katarina Blask, Lea Gerhards & Maria Jalynskij - 2021 - Frontiers in Psychology 11.
    Starting from the observation that data sharing in general and sharing of reusable behavioral data in particular is still scarce in psychology, we set out to develop a curation standard for behavioral psychological research data rendering data reuse more effective and efficient. Specifically, we propose a standard that is oriented toward the requirements of the psychological research process, thus considering the needs of researchers in their role as data providers and data users. To (...)
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  13.  48
    Documentary With Ephemeral Media: Curation Practices in Online Social Spaces.Ingrid Erickson - 2010 - Bulletin of Science, Technology and Society 30 (6):387-397.
    New hardware such as mobile handheld devices and digital cameras; new online social venues such as social networking, microblogging, and online photo sharing sites; and new infrastructures such as the global positioning system are beginning to establish new practices—what the author refers to as “sociolocative”—that combine data about a physical location, such as a geotag, with a virtual social act. This research investigates the phenomenon of documentary broadcasting, whereby individuals curate lasting descriptions and commentaries about a location for a (...)
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  14.  60
    Datastructuring—Organizing and curating digital traces into action.John Murray & Mikkel Flyverbom - 2018 - Big Data and Society 5 (2).
    Digital transformations and processes of “datafication” fundamentally reshape how information is produced, circulated and given meaning. In this article, we provide a concept of “datastructuring” which seeks to capture this reshaping as both a product of and productive of social activity. To do this we focus on (1) how new forms of social action map onto and are enabled by technological changes related to datafication, and (2) how new forms of datafied social action constitute a form of knowledge production which (...)
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  15. Operationalizing Expectations and Mapping Challenges of Information Privacy and Data Protection Measures: A Curated Literature Overview.Indranath Gupta - 2026 - Singapore: Springer Nature Singapore.
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  16. What difference does quantity make? On the epistemology of Big Data in biology.Sabina Leonelli - 2014 - Big Data and Society 1 (1):2053951714534395.
    Is Big Data science a whole new way of doing research? And what difference does data quantity make to knowledge production strategies and their outputs? I argue that the novelty of Big Data science does not lie in the sheer quantity of data involved, but rather in (1) the prominence and status acquired by data as commodity and recognised output, both within and outside of the scientific community and (2) the methods, infrastructures, technologies, skills and (...)
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  17.  69
    Data Cleaners for Pristine Datasets: Visibility and Invisibility of Data Processors in Social Science.Jean-Christophe Plantin - 2019 - Science, Technology, and Human Values 44 (1):52-73.
    This article investigates the work of processors who curate and “clean” the data sets that researchers submit to data archives for archiving and further dissemination. Based on ethnographic fieldwork conducted at the data processing unit of a major US social science data archive, I investigate how these data processors work, under which status, and how they contribute to data sharing. This article presents two main results. First, it contributes to the study of invisible technicians (...)
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  18.  69
    Relational data paradigms: What do we learn by taking the materiality of databases seriously?Karen M. Wickett & Andrea K. Thomer - 2020 - Big Data and Society 7 (1).
    Although databases have been well-defined and thoroughly discussed in the computer science literature, the actual users of databases often have varying definitions and expectations of this essential computational infrastructure. Systems administrators and computer science textbooks may expect databases to be instantiated in a small number of technologies (e.g., relational or graph-based database management systems), but there are numerous examples of databases in non-conventional or unexpected technologies, such as spreadsheets or other assemblages of files linked through code. Consequently, we ask: How (...)
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  19.  75
    Data-bodies and data activism: Presencing women in digital heritage research.Terrie Lynn Thompson - 2020 - Big Data and Society 7 (2).
    As heritage-as-the-already-occurred folds into heritage-in-the-making practices, temporal and spatial fluidity is made more complex by digital mediation and particularly by Big Data. Such liveliness evokes ontological, epistemological and methodological challenges. Drawing on more-than-human theorizing, this article reframes the notion of data-bodies to advance data activist-oriented research in heritage. Focused primarily on women, it examines how their distributed agency and voice with respect to data practices and the (re)makings of (digital) heritage could be amplified. I describe three (...)
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  20.  96
    The ethics of data interoperability: Mapping problems and strategies in biomedical data and beyond.Asher Brandon Caplan & Colin Koopman - 2025 - Big Data and Society 12 (2):1-14.
    Data interoperability poses unique ethical challenges across a range of academic, industrial, and governmental implementations of data systems. Central to data interoperability is the design of systems and protocols for exchanging or integrating data from different initial source domains. Data interoperability is often regarded as necessary for carrying out tasks between different organizations and suborganizations as well as for ensuring secondary use of data for research purposes. However, interoperability poses a number of ethical problems (...)
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  21.  55
    Towards Responsible Plant Data Linkage: Data Challenges for Agricultural Research and Development.Hugh F. Williamson & Sabina Leonelli (eds.) - 2023 - Cham: Springer Verlag.
    This open access book provides the first systematic overview of existing challenges and opportunities for responsible data linkage, and a cutting-edge assessment of which steps need to be taken to ensure that plant data are ethically shared and used for the benefit of ensuring global food security – one of the UN’s Sustainable Development Goals. The volume focuses on the contemporary contours of such challenges through sustained engagement with current and historical initiatives and discussion of best practices and (...)
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  22. What is data ethics?Luciano Floridi & Mariarosaria Taddeo - 2016 - Philosophical Transactions of the Royal Society A 374 (2083):20160360.
    This theme issue has the founding ambition of landscaping Data Ethics as a new branch of ethics that studies and evaluates moral problems related to data (including generation, recording, curation, processing, dissemination, sharing, and use), algorithms (including AI, artificial agents, machine learning, and robots), and corresponding practices (including responsible innovation, programming, hacking, and professional codes), in order to formulate and support morally good solutions (e.g. right conducts or right values). Data Ethics builds on the foundation provided (...)
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  23.  96
    Data Management and Data Sharing in Science and Technology Studies.Edward J. Hackett, Manfred Laubichler, John N. Parker & Jane Maienschein - 2019 - Science, Technology, and Human Values 44 (1):143-160.
    This paper presents reports on discussions among an international group of science and technology studies (STS) scholars who convened at the US National Science Foundation (January 2015) to think about data sharing and open STS. The first report, which reflects discussions among members of the Society for Social Studies of Science (4S), relates the potential benefits of data sharing and open science for STS. The second report, which reflects discussions among scholars from many professional STS societies (i.e., European (...)
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  24. Data cultures of mobile dating and hook-up apps: Emerging issues for critical social science research.Rowan Wilken, Kane Race, Ben Light, Jean Burgess & Kath Albury - 2017 - Big Data and Society 4 (2).
    The ethical and social implications of data mining, algorithmic curation and automation in the context of social media have been of heightened concern for a range of researchers with interests in digital media in recent years, with particular concerns about privacy arising in the context of mobile and locative media. Despite their wide adoption and economic importance, mobile dating apps have received little scholarly attention from this perspective – but they are intense sites of data generation, algorithmic (...)
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  25.  43
    Data-Driven History of Ideas.Arianna Betti & Hein van den Berg (eds.) - 2025 - London: Journal of Open Humanities Data.
    The new field of data-driven history of ideas combines qualitative, quantitative and computational methods for the study of the origins, development and spread of ideas from any time and place. It also comes with two challenging demands that are distinctive in the landscape of computational humanities. The first is the demand for the adequate representation and detection of concepts, rather than words; the second is the need for high-quality, virtually 100% accurate large corpora in many languages across centuries by (...)
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  26.  33
    Big Web data, small focus: An ethnosemiotic approach to culturally themed selective Web archiving.Saskia Huc-Hepher - 2015 - Big Data and Society 2 (2).
    This paper proposes a multimodal ethnosemiotic conceptual framework for culturally themed selective Web archiving, taking as a practical example the curation of the London French Special Collection (LFSC) in the UK Web Archive. Its focus on a particular ‘community’ is presented as advantageous in overcoming the sheer scale of data available on the Web; yet, it is argued that these ethnographic boundaries may be flawed if they do not map onto the collective self-perception of the London French. The (...)
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  27.  45
    Data ratcheting and data-driven organisational change in transport.Liam Heaphy - 2019 - Big Data and Society 6 (2).
    This article explores the process by which intelligent transport system technologies have further advanced a data-driven culture in public transport and traffic control. Based on 12 interviews with transport engineers and fieldwork visits to three control rooms, it follows the implementation of Real-Time Passenger Information in Dublin and the various technologies on which it is dependent. It uses the concept of ‘data ratcheting’ to describe how a new data-driven rational order supplants a gradualist, conservative ethos, creating technological (...)
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  28.  46
    Ethical, legal, and social challenges of data economy in defence the case of battlefield data.Brian Kot, Jack Burling Nebe & Mariarosaria Taddeo - 2026 - AI and Society 41 (2):1131-1148.
    Battlefield data have become a critical asset in contemporary defence. Yet there is a gap in the relevant literature, whilst it addresses various aspects of defence data management—including cybersecurity, interoperability, and decision-making support—it overlooks how these data should be collected, curated, and accessed to enhance the responsible development of AI-enabled defence capabilities. This article addresses this gap first by reviewing existing data policies strategies of NATO and Five Eyes Member States to assess the extent to which (...)
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  29. Big data and information quality.Luciano Floridi - 2014 - In Luciano Floridi & Phyllis Illari, The philosophy of information quality. Cham: Springer Verlag. pp. 303–315.
    This paper is divided into two parts. In the first, I shall briefly analyse the phenomenon of “big data”, and argue that the real epistemological challenge posed by the zettabyte era is small patterns. The valuable undercurrents in the ocean of data that we are accumulating are invisible to the computationally-naked eye, so more and better technology will help. However, because the problem with big data is small patterns, ultimately, the game will be won by those who (...)
     
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  30.  50
    Big Data and Research Opportunities Using HRAF Databases.Michael D. Fischer & Carol R. Ember - 2018 - In Shu-Heng Chen, Big Data in Computational Social Science and Humanities. Cham: Springer Verlag. pp. 323-336.
    The HRAF databases, eHRAF World Cultures and eHRAF Archaeology, each containing large corpora of curated text subject-indexed at the paragraph-level by anthropologists, were designed to facilitate rapid retrieval of information. The texts describe social and cultural life in past and present societies around the world. As of the spring of 2018, eHRAF contains almost three million indexed “paragraph” units from over 8000 documents describing over 400 societies and archaeological traditions. This chapter first discusses concrete problems of scale resulting from large (...)
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  31.  69
    Hypocrisy Around Medical Patient Data: Issues of Access for Biomedical Research, Data Quality, Usefulness for the Purpose and Omics Data as Game Changer.Erwin Tantoso, Wing-Cheong Wong, Wei Hong Tay, Joanne Lee, Swati Sinha, Birgit Eisenhaber & Frank Eisenhaber - 2019 - Asian Bioethics Review 11 (2):189-207.
    Whether due to simplicity or hypocrisy, the question of access to patient data for biomedical research is widely seen in the public discourse only from the angle of patient privacy. At the same time, the desire to live and to live without disability is of much higher value to the patients. This goal can only be achieved by extracting research insight from patient data in addition to working on model organisms, something that is well understood by many patients. (...)
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  32. “A Patchwork of Data Systems”: Quilting as an Analytic Lens and Stabilizing Practice for Knowledge Infrastructures.Alexandria J. Rayburn & Andrea K. Thomer - 2024 - Science, Technology, and Human Values 49 (5):1073-1102.
    Museums and archives rely on databases and similar technologies to manage their collections, but even when tailor-made for memory institutions, databases require considerable adaptation to remain usable over long periods of time. To better understand how collection staff maintain and migrate databases over multiple years and decades, we talked to archivists from the US-based Archon User Collaborative and collection managers from the University of Michigan Research Museums. We found that the collection staff uses terms taken from quilting for database (...): they “tie” and “weave” a “patchwork of data systems” together. We extend their quilting metaphor as an analytical lens and show what can be gained through a shift in framing database work as a craft. We describe database curation as a process of creating a quilted infrastructure: a long-lived knowledge system that is sustained by the use of multiple “digital surfaces,” a reliance on a community of practice, intergenerational transfer of “quilts,” and by leveraging invisibility to conduct work. We argue that this nonnormative mode of computing needs better support from both software developers and administrators. We also show that although the invisibility of craft practices offers practitioners independence, it also can increase their precarity. (shrink)
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  33. “A Patchwork of Data Systems”: Quilting as an Analytic Lens and Stabilizing Practice for Knowledge Infrastructures.Alexandria J. Rayburn & Andrea K. Thomer - 2024 - Science, Technology, and Human Values 49 (5):1073-1102.
    Museums and archives rely on databases and similar technologies to manage their collections, but even when tailor-made for memory institutions, databases require considerable adaptation to remain usable over long periods of time. To better understand how collection staff maintain and migrate databases over multiple years and decades, we talked to archivists from the US-based Archon User Collaborative and collection managers from the University of Michigan Research Museums. We found that the collection staff uses terms taken from quilting for database (...): they “tie” and “weave” a “patchwork of data systems” together. We extend their quilting metaphor as an analytical lens and show what can be gained through a shift in framing database work as a craft. We describe database curation as a process of creating a quilted infrastructure: a long-lived knowledge system that is sustained by the use of multiple “digital surfaces,” a reliance on a community of practice, intergenerational transfer of “quilts,” and by leveraging invisibility to conduct work. We argue that this nonnormative mode of computing needs better support from both software developers and administrators. We also show that although the invisibility of craft practices offers practitioners independence, it also can increase their precarity. (shrink)
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  34.  40
    The Ethics of Biomedical Big Data.Luciano Floridi & Brent Daniel Mittelstadt (eds.) - 2016 - Cham: Imprint: Springer.
    This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. 'Biomedical Big Data' refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can (...)
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  35. Ethics, archives and data sharing in qualitative research.Julie McLeod & Kate O’Connor - 2020 - Educational Philosophy and Theory 53 (5):523-535.
    This article investigates dilemmas in the archiving and sharing of qualitative data in educational research, critically engaging with practices and debates from across the social sciences. Ethical, epistemological and methodological challenges are examined in reference to open access agendas, the politics of knowledge production, and transformations in research practices in the era of data management. We first consider practical and interpretive decisions in archiving qualitative data, then map current policy and regulatory frameworks governing research data management, (...)
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  36. On samples, data, and their mobility in biobanking: How imagined travels help to relate samples and data.Ulrike Felt, Lisa-Maria Ferent & Ingrid Metzler - 2023 - Big Data and Society 10 (1).
    Biobanking involves the assembling, curating, and distributing of samples and data. While relations between samples and data are often taken as defining properties of biobanking, several studies have pointed to the challenges in relating them in practice. This article investigates how samples and data are curated, connected, and made mobile in practice. Building on an analysis of data collected at five hospital-based biobanks in Austria, the article describes and compares biobanking in three types of biobank collections: (...)
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  37.  88
    To share or not to share: Incentivizing data sharing in life science communities.Louise Bezuidenhout - 2018 - Developing World Bioethics 19 (1):18-24.
    Most scientists recognize the importance of sharing data online in an open fashion. Nonetheless, many studies have documented the concerns that accompany data sharing activities, including loss of credit or IP, misuse and the time needed to curate interoperable data. To this end, discussions around data sharing often identify incentives that could potentially ameliorate these disincentivising concerns. Nonetheless, current Open Data discussions often rely on evidence‐based studies to identify the disincentives to overcome. This results in (...)
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  38. Annotating affective neuroscience data with the Emotion Ontology.Janna Hastings, Werner Ceusters, Kevin Mulligan & Barry Smith - 2012 - In Janna Hastings, Werner Ceusters, Kevin Mulligan & Barry Smith, Third International Conference on Biomedical Ontology. ICBO. pp. 1-5.
    The Emotion Ontology is an ontology covering all aspects of emotional and affective mental functioning. It is being developed following the principles of the OBO Foundry and Ontological Realism. This means that in compiling the ontology, we emphasize the importance of the nature of the entities in reality that the ontology is describing. One of the ways in which realism-based ontologies are being successfully used within biomedical science is in the annotation of scientific research results in publicly available databases. Such (...)
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  39.  21
    Beyond Lexical Equivalence: A Corpus Semantic Analysis of ‘Privacy’ and ‘Data Protection’ Across Jurisdictions.Pengfei Bao - forthcoming - International Journal for the Semiotics of Law - Revue Internationale de Sémiotique Juridique:1-22.
    The transboundary nature of data flows necessitates a nuanced understanding of core legal concepts across jurisdictions. While terms like “privacy” and “data protection” are often used interchangeably in global discourse, this study posits that they embody distinct, jurisdictionally specific semantic and conceptual structures. Moving beyond traditional doctrinal comparison, this research employs a novel computational linguistics and corpus semantics framework to analyze a curated digital corpus comprising the European Union’s General Data Protection Regulation (GDPR), the California Consumer Privacy (...)
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  40. On the application of formal principles to life science data: A case study in the Gene Ontology.Jacob Köhler, Anand Kumar & Barry Smith - 2004 - In Köhler Jacob, Kumar Anand & Smith Barry, Proceedings of DILS 2004 (Data Integration in the Life Sciences), (Lecture Notes in Bioinformatics 2994). Springer. pp. 79-94.
    Formal principles governing best practices in classification and definition have for too long been neglected in the construction of biomedical ontologies, in ways which have important negative consequences for data integration and ontology alignment. We argue that the use of such principles in ontology construction can serve as a valuable tool in error-detection and also in supporting reliable manual curation. We argue also that such principles are a prerequisite for the successful application of advanced data integration techniques (...)
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  41. Stepping Forwards by Looking Back: Underdetermination, Epistemic Scarcity and Legacy Data.Adrian Currie - 2021 - Perspectives on Science 29 (1):104-132.
    Debate about the epistemic prowess of historical science has focused on local underdetermination problems generated by a lack of historical data; the prevalence of information loss over geological time, and the capacities of scientists to mitigate it. Drawing on Leonelli’s recent distinction between ‘phenomena-time’ and ‘data-time’ I argue that factors like data generation, curation and management significantly complexifies and undermines this: underdetermination is a bad way of framing the challenges historical scientists face. In doing so, I (...)
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  42. OBO Foundry in 2021: Operationalizing Open Data Principles to Evaluate Ontologies.Rebecca C. Jackson, Nicolas Matentzoglu, James A. Overton, Randi Vita, James P. Balhoff, Pier Luigi Buttigieg, Seth Carbon, Melanie Courtot, Alexander D. Diehl, Damion Dooley, William Duncan, Nomi L. Harris, Melissa A. Haendel, Suzanna E. Lewis, Darren A. Natale, David Osumi-Sutherland, Alan Ruttenberg, Lynn M. Schriml, Barry Smith, Christian J. Stoeckert, Nicole A. Vasilevsky, Ramona L. Walls, Jie Zheng, Christopher J. Mungall & Bjoern Peters - 2021 - Bioarxiv.
    Biological ontologies are used to organize, curate, and interpret the vast quantities of data arising from biological experiments. While this works well when using a single ontology, integrating multiple ontologies can be problematic, as they are developed independently, which can lead to incompatibilities. The Open Biological and Biomedical Ontologies Foundry was created to address this by facilitating the development, harmonization, application, and sharing of ontologies, guided by a set of overarching principles. One challenge in reaching these goals was that (...)
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  43. Optimization of Scientific Reasoning: a Data-Driven Approach.Vlasta Sikimić - 2019 - Dissertation,
    Scientific reasoning represents complex argumentation patterns that eventually lead to scientific discoveries. Social epistemology of science provides a perspective on the scientific community as a whole and on its collective knowledge acquisition. Different techniques have been employed with the goal of maximization of scientific knowledge on the group level. These techniques include formal models and computer simulations of scientific reasoning and interaction. Still, these models have tested mainly abstract hypothetical scenarios. The present thesis instead presents data-driven approaches in social (...)
     
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    Ethical and Equitable Digital Health Research: Ensuring Self-Determination in Data Governance for Racialized Communities.Mozharul Islam, Arafaat A. Valiani, Ranjan Datta, Mohammad Chowdhury & Tanvir C. Turin - 2026 - Cambridge Quarterly of Healthcare Ethics 35 (1):75-85.
    Recent studies highlight the need for ethical and equitable digital health research that protects the rights and interests of racialized communities. We argue for practices in digital health that promote data self-determination for these communities, especially in data collection and management. We suggest that researchers partner with racialized communities to curate data that reflects their wellness understandings and health priorities, and respects their consent over data use for policy and other outcomes. These data governance approach (...)
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  45. Toll-like receptor signaling in vertebrates: Testing the integration of protein, complex, and pathway data in the Protein Ontology framework.Cecilia Arighi, Veronica Shamovsky, Anna Maria Masci, Alan Ruttenberg, Barry Smith, Darren Natale, Cathy Wu & Peter D’Eustachio - 2015 - PLoS ONE 10 (4):e0122978.
    The Protein Ontology provides terms for and supports annotation of species-specific protein complexes in an ontology framework that relates them both to their components and to species-independent families of complexes. Comprehensive curation of experimentally known forms and annotations thereof is expected to expose discrepancies, differences, and gaps in our knowledge. We have annotated the early events of innate immune signaling mediated by Toll-Like Receptor 3 and 4 complexes in human, mouse, and chicken. The resulting ontology and annotation data (...)
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  46.  93
    Are the dead taking over Facebook? A Big Data approach to the future of death online.David S. Watson & Carl J. Öhman - 2019 - Big Data and Society 6 (1).
    We project the future accumulation of profiles belonging to deceased Facebook users. Our analysis suggests that a minimum of 1.4 billion users will pass away before 2100 if Facebook ceases to attract new users as of 2018. If the network continues expanding at current rates, however, this number will exceed 4.9 billion. In both cases, a majority of the profiles will belong to non-Western users. In discussing our findings, we draw on the emerging scholarship on digital preservation and stress the (...)
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  47. Resolution Ethics Engine (REE): A Framework for Verifiable Ethical Reasoning.Jun S. - manuscript
    Centuries of moral philosophy from Aristotle to Kant gave us frameworks for thinking about right and wrong. Decades of AI safety research gave us RLHF, Constitutional AI, and adversarial training. None of them verify whether reasoning is coherent. Alignment faking has been observed in frontier models (e.g., 14% compliance with harmful queries when the model believes it is in training, and alignment-faking reasoning increasing to 78% after reinforcement learning in one setting) [8]. Reward hacking attempts appear in recent model evaluations (...)
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  48. OmniSearch: a semantic search system based on the Ontology for MIcroRNA Target Gene Interaction data.Huang Jingshan, Gutierrez Fernando, J. Strachan Harrison, Dou Dejing, Huang Weili, A. Blake Judith, Barry Smith, Eilbeck Karen, A. Natale Darren & Lin Yu - 2016 - Journal of Biomedical Semantics 7 (1):1.
    In recent years, sequencing technologies have enabled the identification of a wide range of non-coding RNAs (ncRNAs). Unfortunately, annotation and integration of ncRNA data has lagged behind their identification. Given the large quantity of information being obtained in this area, there emerges an urgent need to integrate what is being discovered by a broad range of relevant communities. To this end, the Non-Coding RNA Ontology (NCRO) is being developed to provide a systematically structured and precisely defined controlled vocabulary for (...)
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  49. Guidelines for writing definitions in ontologies.Selja Seppälä, Alan Ruttenberg & Barry Smith - 2017 - Ciência da Informação 46 (1): 73-88.
    Ontologies are being used increasingly to promote the reusability of scientific information by allowing heterogeneous data to be integrated under a common, normalized representation. Definitions play a central role in the use of ontologies both by humans and by computers. Textual definitions allow ontologists and data curators to understand the intended meaning of ontology terms and to use these terms in a consistent fashion across contexts. Logical definitions allow machines to check the integrity of ontologies and reason over (...)
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  50. Imaginaries of democratization and the value of open environmental data: Analysis of Microsoft's planetary computer.Przemyslaw Matt Lukacz - 2024 - Big Data and Society 11 (2).
    The proliferation of environmentally oriented programs within the tech industry, and the industry's coinciding efforts toward data and technology democratization, generate concerns about the status of environmental data within digital economy. While the accumulation of digital personal data has been a cornerstone of domination of the data analytics industry, many believe environmental data to be a source of “untapped potential.” The potential of environmental data, the argument goes, would benefit equally the digital economy, environmental (...)
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