@ Tel Aviv Pride

My mom sometimes talks about a child in her neighborhood who was born with hydrocephaly and died of it. His parents strove to keep him alive for years, but he ultimately passed after a long decline. No treatment available. No hope at all, and the parents knew it from his birth.

Several decades later my sister had an MRI, as a long shot, to try to figure out why she was sick and deteriorating with a number of symptoms that were close to being written off as anxiety. She was sent straight to the hospital for adult onset hydrocephaly. Two days later she had brain surgery to put a shunt down her neck into her stomach and drain the fluid out. (No, you cannot usually get brain surgery that fast. Yes, it was that urgent.) Recovery was long and squiggly but it happened.

I think of that boy every once in a while. The one who died. I have no doubt that treatments developed for people like him, and tested on people like him, saved my sister's life.

He never knew he made the world better. His condition was severe, he never knew much of anything, I don't think. I think if I ever track down a God or something like one, that'll be somewhere on my List of Wishes. To make sure people like him know that they helped.

I think about this a lot.

I've been type 1 diabetic since I was about one and a half, and was incredibly sick. If my mother hadn't also been type 1 and recognized the signs I likely would have died.

I was born in 1982. Insulin was first given to a patient in 1922, and he survived. Before that, type 1 meant death, often very slow and agonizing. Before insulin, doctors advised a super strict "keto" diet to prolong life, and it could work for awhile - up to a year, I believe. But it was a miserable existence as the body was literally eating itself as the blood turned acidic until the patient eventually died.

60 years. Only 60 years before my birth did that procedure work for the first time. That's absolutely nothing given the span of human history and I think a lot about the people who died from it throughout time.

But yes, people tried. Healers and doctors of all sorts tried all manner of things to allow these (mostly!) kids to live. The fact that it was accomplished at all is nothing short of a miracle. The fact that I've been alive 42 years is fucking insane considering my body doesn't produce a hormone necessary for survival. If you think that doesn't blow me away on a regular basis you have another think coming. It's nothing short of a miracle.

Every medical advancement is. The amount of work that goes into it and the vast amount of luck necessary to get it right even when all the research and information is sound is just astonishing.

Thank you, humanity. Thank you ingenuity and determination to save lives and make them better. Thank you to every medical practitioner and medical researcher in existence now and through all of time. Thank you to all the people who died so I could live.

Diabetes is one of these illnesses that really throws medical history into perspective. It's so common, everyone knows someone who has it, people live pretty normal lives with it. And yet, a hundred years ago, it was an instant death sentence. And then we were able to treat people with insulin and yet - it was extremely disabling. The insulin was extracted from animal pancreas had severe side effects, even with how similar the hormones are, there is always an averse reaction to proteins from foreign species, especially during long-term treatment. Injections had to be given every few hours, at-home-tests were only available from the 70s onwards. Insulin pumps entered the market in the 80s. Genetically produced insulin - humanized insulin - was first available in the US in 1982, in many countries only around the year 2000.

In 1930, having diabetes type I would basically mean being hospital bound, being woken every few hours for regular injections.

In 1965, you'd be able to live at home and get by with a very strict diet and a few timed injections. You'd struggle with chronical side effects. Having children wasn't done - passing on your genes would be immoral, and it might not even be legal for you to marry.

In the year 2000, you'd have a device clipped to your belt that would measure your blood sugar and distribute insulin, you only need to change the needle a few times a day. You might even be allowed to join in P.E. class

In 2025, you stick on two patches that do the same thing. They're synchronized through your phone.

That wasn't fate. It's not natural development that made diabetes a common chronic illness. It was hundreds of people who cared. It was the people who created the keto diet. It was the people who came up with tests. The ones who went through different species, trying to figure out the closest analogon to human insulin. It was the people who fought in court to get genetically produced insulin approved for medical use. It was people who looked at a rare, incurable disease and said "but what if it wasn't?"

Reminds me of this one:

This is also part of why I'm so loud about homeschool reform, specifically in the USA.

In the US, there is no meaningful legal definition for educational/academic neglect in any of the 50 states or federally. What this means is that a child can be "homeschooled" and exclusively be taught how to cook and clean, reach the age of 18 being unable to read, write, or count, and this alone is not considered neglect. That 18yo, should they even have the knowledge that suing exists, has no legal grounds to sue their parents for denying them an education.

In over 40 US states, a convicted child abuser can homeschool their children. So someone who has done time for child abuse and somehow regains access to their child(ren) can decide upon returning home that they want to "homeschool" their kids. Those children are now locked in a home with their abuser where nobody can see them.

There are no welfare checks.

There are no routine assessments.

There aren't even databases — state or federal — keeping track of how many homeschooled kids there actually are.

Meaning a child can be locked in their home for their entire life with their convicted abuser, learn absolutely nothing, never go to the doctor, and so long as that child is fed, clothed, and the abuse isn't physical or sexual, that child has almost no chance of rescue and no legal ground to seek restitution if/when they escape.

The only way homeschooled children get rescued is if they're beaten, starved, or physically neglected and they're able to get the right person to see that. Otherwise? They have to wait until someone finds out they were murdered as a result of their parents "homeschooling".

And feral homeschool parents love to jump down my throat about this, and then get even more pissed when I tell them I'm a homeschool alumni.

Because I know it's not all homeschoolers. But even one is too many, and the lack of protections should scare everyone. If you're a good homeschool parent, nothing will change. If not, you deserve whatever comes your way as a result of adequate oversight.

Children deserve rights.

this post really attracted the lamest people in the fucking world