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editrx

January 2022

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editrx: (martini)
Saw the regular opthomologist yesterday and she confirmed it IS NOT GLAUCOMA. I don't have it. Never had it.

According to her investigations into the files, looks like in 2012 some technician put it down as a diagnosis linked to my having my usual field-vision test done because I take Plaquenil. But instead of linking it to "takes Plaquenil" they linked it to a common diagnosis for taking that test, which is glaucoma.

So the diagnosis was there since 2012 AND NO ONE NOTICED. Including during my 2014 exam.

This says something for the doctor I used to see at DHMC. Not going to see him again!

Anyway, Dr. Lawrence was wonderful, even did a tear film test to see how my collagen plugs were doing (they're wearing off, which is about right timing -- they were the ones good for about a month), and said my left eye is drier. Which I could have told her. It's been burning and scratchy to the point of real bad pain. She told me I should be using artificial tears "throughout the day," so I guess I need to start carrying a tiny bottle in my trouser pocket at all times.

She claims the cauterization of a tear duct "doesn't hurt," but the Internet says otherwise. And apparently it isn't permanent. So I'm not so sure about this anymore. I'll talk to Dr. Miller about it in a few weeks when I see him again when the plugs have completely worn off. Doing longer term plugs would make more sense, if cauterization wears off, why not use plugs that wear off? I dunno. I guess I'll find out.

Oh, and I get new glasses now. Finally, after 7 years and glasses that now are so useless I don't even wear them, as without I see better than with. Ugh. The new ones should be ready in a week. Yay! I have no money left now, though. How I'll make rent for the store given I have to pay the quarterly sales taxes is anybody's guess. I'm about $1,000 short.
editrx: (martini)
So my eyes are acting up: had to go to an emergency appointment on Friday and close the bookstore, as they were burning so badly and so light sensitive I could barely open them. They'd been slowly getting worse for weeks.

Doctor put in collagen plugs in the tear ducts to see if they could keep some tear film in the eyes, as my Sjogren's means I never have enough, but apparently it's flaring so badly (or progressing) I don't have much film at all. So far I can't feel the plugs (which is good -- it was creepy having them put in!), but my eyes are still dry and under the lights in the bookstore, plus being on the computer, it means they burn by the end of the day.

We're going to see how the plugs do, and if my eyes don't overflow, that means I may be right for them (::squidge::) closing the ducts permanently with a laser. Anyone doing anything to my eyes squidges me out: I can barely handle regular exams. This idea really freaks me.

So I'm on less computer time than usual :( and time in the dark when I can. I put in drops constantly to hydrate them, and I have special drops twice a day, which I've been on for years. And I see him again in a month.

In the meantime, he was going over my charts and asked me how my GLAUCOMA was doing. WUT???!!! No one ever told me I had glaucoma. I'm not on meds for it, no one told me, nothing. It's apparently been on the charts for several years. And my pressure is up. So what the hell is going on?! He wouldn't answer. Told me I was at an "emergency appointment" and the glaucoma was something I had to ask my regular eye doctor about. He just shrugged it off and refused, REFUSED to discuss it. Talked right over me.

OMG. Glaucoma? You're got to be shitting me. Luckily I see the regular eye doctor in 2 weeks to have new glasses done (which I desperately need). I'm going to be screaming at her and reading her the riot act. And if she tries to pass me off to yet another doctor and not discuss the glaucoma diagnosis, I'm going to start throwing things. I swear to god. That office will be trashed. No one can diagnose me with a disease like that and not discuss it with me and not treat it, for god's sake. I can't believe this. I could start going blind and no one would take responsibility for treating or talking about it.
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