Data Access, Protection, and Confidentiality

The Data Access, Protection and Confidentiality (DAPC) Working Group is a multi-disciplinary team of scholars and professionals with expertise in clinical curation, data sharing policies, ethical and legal frameworks, software development, and clinical genetics practice.

Documents Membership

Mission

Our mission is to manage data policy frameworks for ClinGen that respond to the needs of an evolving curation ecosystem.

 

Links

ClinGen Data Sharing Resources

ClinGen Patient Data Sharing

ClinGen Variant Curation Interface Terms of Use

ClinGen Working Group Conflict of Interest and Use of ClinGen Curation Data Policies

Chairs
Kristy Lee MS, CGC
Jules Savatt MSc, CGC
Matt W Wright, PhD
Coordinators
Please contact a coordinator if you have questions.
Clarissa Klein MS
cjklein@stanford.edu

Documents

Working Group Membership

Membership spans many fields, including genetics, medical, academia, and industry.

Chairs

Coordinators