Fun with bowel conditions
Livejournal all but abandoned now, only a handful of people seem to post to it. Still, it's a good place for lengthy exposition such as I'd like to do today.
Some time last year I started getting indigestion shortly after going to bed some nights. I found that I had to sit up for a while and drink a lot of water for it to subside. It didn't happen much, only when I ate something in the evening, and ultimately seemed to go away, so I didn't think much more of it.
Then I started having trouble swallowing during dinner. Shortly after starting eating I'd feel some food blocked in my throat and have to stop eating for a while as I waited for it to go down. A couple of times it wouldn't go down at all and I had to sprint to the loo to throw it up. As soon as I started to think I should call the doctor it went away again, so again I just left it.
But it got worse. I started doing this kind of retching when I went to bed, and it kept me awake at nights. The day retching turned to vomiting I called the doctor.
First I had a blood test, and nothing was found so I moved on to a gastroscope. This is not something I'd recommend, unless you like the idea of someone thrusting a cable into your duodenum. Thankfully that also turned up nothing, no scarring or lumps which could suggest something really nasty. However the geezer did notice that my lower oesophageal sphincter was spasming. Also, as they initially pushed the camera down my oesophagus I vomited and one of the orderlies questioned when I'd last eaten. The plot thickens.
Next a barium swallow. This isn't as bad as the dreaded barium meal, I just had to swallow a mouthful of the barium solution and the doctor could see the problem straight away. It's a condition called Achalasia, which means that my lower oesophageal sphincter doesn't relax properly after swallowing. Food gets stuck in my oesophagus, which is distending into what the doctor described as a second stomach. Lovely. Apparently no-one really knows what causes it, and the underlying condition can't be cured, but it can be treated for a full symptomatic recovery. I've read different reports on its rarity, from 1 in 20,000 to 1 in 200,000. Either way, it's fairly rare.
Since then I've seen a private specialist and he's referred me on for another test, an oesophageal manometry. It's a bit annoying that as I already know what I've got from the barium swallow test, in fact it could have been inferred from the gastroscopy, though as I understand it they need it so they can do another test after treatment for a comparison.
So what treatment can I expect? It's almost certainly going to be surgery. No-one likes surgery, but by the looks of it that'll sort it all out and I'll be back to normal, so I'm hoping that's what'll happen.
And I'm hoping that'll happen soon. It's a progressive condition, and boy has it progressed. I'm vomiting on average 5 times a day, every meal is a challenge and over the last month I've lost weight at a rate of 1kg a week. Bending over is very uncomfortable, and when you have young children (P.S. I now have 2!) that's something you find yourself doing a lot. On the specialist's suggestion I'm having solids for lunch and only liquids for dinner, and soup got old after 2 days of that. If I do have surgery I'll be on a soft diet for a month, but after that I'm having a f***ing banquet.
What annoys me is that the whole process is ridiculously slow. GP suggests a test, writes to a clinic, they write to you with an appointment, you have the appointment, they write back to your GP with the results, you have to guess if they've received them and call back on the right day. And if you have multiple tests, you keep having to go round this loop again and again, taking about 3 weeks each time. I wouldn't mind so much if I had something minor and stable, but for a progressive condition you want it sorted before it progresses too much, y'know? Over Christmas basically nothing happened for 3 weeks, and only then because I had an extremely bad day and Kath started calling private specialists. I mean, I know it was Christmas, but 3 weeks just to send out a letter? And why is everything done by post in the 21st century? Thankfully now I have gone private, which I'd previously hesitated on due to the excess on health insurance, things are moving a little quicker. But the oesophageal manometry leaflet says I should wait 2 weeks after the test before seeing the specialist. WTF?
Anyways, I'm hoping I'll be able to get the surgery booked in next month and hopefully it'll all be behind me come March. Fingers crossed.
Some time last year I started getting indigestion shortly after going to bed some nights. I found that I had to sit up for a while and drink a lot of water for it to subside. It didn't happen much, only when I ate something in the evening, and ultimately seemed to go away, so I didn't think much more of it.
Then I started having trouble swallowing during dinner. Shortly after starting eating I'd feel some food blocked in my throat and have to stop eating for a while as I waited for it to go down. A couple of times it wouldn't go down at all and I had to sprint to the loo to throw it up. As soon as I started to think I should call the doctor it went away again, so again I just left it.
But it got worse. I started doing this kind of retching when I went to bed, and it kept me awake at nights. The day retching turned to vomiting I called the doctor.
First I had a blood test, and nothing was found so I moved on to a gastroscope. This is not something I'd recommend, unless you like the idea of someone thrusting a cable into your duodenum. Thankfully that also turned up nothing, no scarring or lumps which could suggest something really nasty. However the geezer did notice that my lower oesophageal sphincter was spasming. Also, as they initially pushed the camera down my oesophagus I vomited and one of the orderlies questioned when I'd last eaten. The plot thickens.
Next a barium swallow. This isn't as bad as the dreaded barium meal, I just had to swallow a mouthful of the barium solution and the doctor could see the problem straight away. It's a condition called Achalasia, which means that my lower oesophageal sphincter doesn't relax properly after swallowing. Food gets stuck in my oesophagus, which is distending into what the doctor described as a second stomach. Lovely. Apparently no-one really knows what causes it, and the underlying condition can't be cured, but it can be treated for a full symptomatic recovery. I've read different reports on its rarity, from 1 in 20,000 to 1 in 200,000. Either way, it's fairly rare.
Since then I've seen a private specialist and he's referred me on for another test, an oesophageal manometry. It's a bit annoying that as I already know what I've got from the barium swallow test, in fact it could have been inferred from the gastroscopy, though as I understand it they need it so they can do another test after treatment for a comparison.
So what treatment can I expect? It's almost certainly going to be surgery. No-one likes surgery, but by the looks of it that'll sort it all out and I'll be back to normal, so I'm hoping that's what'll happen.
And I'm hoping that'll happen soon. It's a progressive condition, and boy has it progressed. I'm vomiting on average 5 times a day, every meal is a challenge and over the last month I've lost weight at a rate of 1kg a week. Bending over is very uncomfortable, and when you have young children (P.S. I now have 2!) that's something you find yourself doing a lot. On the specialist's suggestion I'm having solids for lunch and only liquids for dinner, and soup got old after 2 days of that. If I do have surgery I'll be on a soft diet for a month, but after that I'm having a f***ing banquet.
What annoys me is that the whole process is ridiculously slow. GP suggests a test, writes to a clinic, they write to you with an appointment, you have the appointment, they write back to your GP with the results, you have to guess if they've received them and call back on the right day. And if you have multiple tests, you keep having to go round this loop again and again, taking about 3 weeks each time. I wouldn't mind so much if I had something minor and stable, but for a progressive condition you want it sorted before it progresses too much, y'know? Over Christmas basically nothing happened for 3 weeks, and only then because I had an extremely bad day and Kath started calling private specialists. I mean, I know it was Christmas, but 3 weeks just to send out a letter? And why is everything done by post in the 21st century? Thankfully now I have gone private, which I'd previously hesitated on due to the excess on health insurance, things are moving a little quicker. But the oesophageal manometry leaflet says I should wait 2 weeks after the test before seeing the specialist. WTF?
Anyways, I'm hoping I'll be able to get the surgery booked in next month and hopefully it'll all be behind me come March. Fingers crossed.