A Phenomenological Methodology for Inclusively Researching the Views and Experiences of Autistic People with Profound Learning Disabilities

In Hanna Bertilsdotter Rosqvist & David Jackson-Perry, The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies. Cham: Springer Nature Switzerland. pp. 257-278 (2024)
  Copy   BIBTEX

Abstract

This chapter presents a methodology for doing research inclusively with autistic people with profound learning disabilities. The purpose of the methodology is to learn about the views and experiences of this group within the context of their everyday lives. The methodology involves in-depth participatory work, a guiding phenomenological framework, Ashworth’s Lifeworld Fractions (2016), and a circular process of fieldwork and analysis. It is argued that this represents an inclusive process as it promotes dialogue, being-with participants, and an approach where participants’ experiences and circumstances guide a study’s methods, focus and theoretical perspectives. Described are the methodology’s phenomenological and inclusive underpinnings, as well as an example of the methodology in practice as drawn from a project that sought the experiences of an autistic adult with profound learning disabilities. The chapter concludes with a reflection on the ways in which the methodology promotes involvement in research of autistic people with profound learning disabilities, as well as its limitations.

Other Versions

No versions found

Links

PhilArchive

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Using Email Interviews to Understand Autistic Experiences.Claire M. Chapman - 2024 - In Hanna Bertilsdotter Rosqvist & David Jackson-Perry, The Palgrave Handbook of Research Methods and Ethics in Neurodiversity Studies. Cham: Springer Nature Switzerland. pp. 359-378.

Analytics

Added to PP
2025-06-23

Downloads
12 (#2,019,000)

6 months
2 (#1,999,237)

Historical graph of downloads
How can I increase my downloads?

Citations of this work

No citations found.

Add more citations

References found in this work

No references found.

Add more references