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Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives
Michelle J. Patrick Woolley, Harriet L. McGowan, Victoria Coathup J. A. Teare, R. Fishman Jennifer, A. Settersten Richard, Jane Kaye Sigrid Sterckx & T. Juengst Eric
Most Recent Articles: Bmc Medical Ethics (forthcoming)
Abstract
The language of “participant-driven research,” “crowdsourcing” and “citizen science” is increasingly being used to encourage the public to become involved in research ventures as both subjects and scientists....Author's Profile
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Citations of this work
The Rise of Citizen Science in Health and Biomedical Research.Andrea Wiggins & John Wilbanks - 2019 - American Journal of Bioethics 19 (8):3-14.
The Precision Medicine Nation.Maya Sabatello & Paul S. Appelbaum - 2017 - Hastings Center Report 47 (4):19-29.
Renewing Medicine’s basic concepts: on ambiguity.Joel Michael Reynolds - 2018 - Philosophy, Ethics, and Humanities in Medicine 13 (1):8.
Biomedical Citizen Science or Something Else? Reflections on Terms and Definitions.Christi J. Guerrini, Anna Wexler, Patricia J. Zettler & Amy L. McGuire - 2019 - American Journal of Bioethics 19 (8):17-19.
Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?Christi J. Guerrini, Meaganne Lewellyn, Mary A. Majumder, Meredith Trejo, Isabel Canfield & Amy L. McGuire - 2019 - BMC Medical Ethics 20 (1):1-13.
References found in this work
“You hoped we would sleep walk into accepting the collection of our data”: controversies surrounding the UK care.data scheme and their wider relevance for biomedical research.Sigrid Sterckx, Vojin Rakic, Julian Cockbain & Pascal Borry - 2016 - Medicine, Health Care and Philosophy 19 (2):177-190.
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