Reliable Narrators of Experience: Rethinking Dementia Narratives from Insider Perspectives

Hastings Center Report 55 (S1):S29-S33 (2025)
  Copy   BIBTEX

Abstract

Cultural narratives about dementia reinforce the idea that people living with the condition are unreliable narrators of their own experiences. Challenges with recall and memory and changes in language that are commonly experienced by people living with dementia become equated to a loss of self. Since language is a shared space where people construct meaning through stories, stories that lack coherence or exhibit broken language are often discounted. To counter the notion that broken narratives reveal broken selves, I present a story by Marlene, a person living with dementia who recalled an encounter with a bobcat while on a camping trip. Rather than considering the veracity of her story, I focus on the importance of the emotions presented—the feeling self. Overall, I argue that by shifting focus from story challenges to expressed emotions, we are better positioned to understand and respect people living with dementia as authorities of their own experiences.

Other Versions

No versions found

Links

PhilArchive

External links

Setup an account with your affiliations in order to access resources via your University's proxy server

Through your library

Similar books and articles

Analytics

Added to PP
2025-09-19

Downloads
64 (#938,575)

6 months
55 (#157,197)

Historical graph of downloads
How can I increase my downloads?

Citations of this work

No citations found.

Add more citations

References found in this work

The wounded storyteller: body, illness, and ethics.Arthur W. Frank - 1995 - Chicago: University of Chicago Press.
Narrative identity and dementia.Tim Thornton - forthcoming - Hungarian Philosophical Review.

Add more references