Genetic Dilemmas and the Child's Right to an Open Future

Hastings Center Report 27 (2):7-15 (1997)
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Abstract

Although deeply committed to the model of nondirective counseling, most genetic counselors enter the profession with certain assumptions about health and disability—for example, that it is preferable to be a hearing person than a deaf person. Thus, most genetic counselors are deeply troubled when parents with certain disabilities ask for assistance in having a child who shares their disability. This ethical challenge benefits little from viewing it as a conflict between beneficence and autonomy. The challenge is better recast as a conflict between parental autonomy and the child's future autonomy.

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reprint Davis, Dena S. (2012) "Genetic Dilemmas and the Child's Right to an Open Future". Hastings Center Report 27(2):7-15

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