Long COVID Justice

Long COVID Justice has been a member of Linktree for 4 years and joined in March 2022. The social media accounts linked to from Long COVID Justice are: • Facebook • Instagram • YouTube • Email • Bluesky • Website Besides social media accounts, longcovidjustice has populated their site with: • Dealing with severe ME after COVID-19 - Long COVID Justice • Racing heart or chest pain? Heart problems after COVID-19 - Long COVID Justice • Training for groups- Disability and Access Continuum — PeoplesHub • 10 Principles of Disability Justice | Sins Invalid • Resources for healthcare providers & researchers - Long COVID Justice • MacArthur Series | Disability + Racial Justice Solidarity – Disability Cultural Center • The Sick Times | Instagram, Facebook | Linktree • HIV Complexities Project - Long COVID Justice • POTS & Dysautonomia - Long COVID Justice • ME and Long COVID - Long COVID Justice • Donate to Long COVID Justice • Disability Resources - Resource Hub - Long COVID Justice • Long COVID Is More Common in Bisexual and Trans People. The Reasons Why Are Complicated • People with HIV may be at higher risk of Long COVID. Here’s what we know. – Long COVID Justice • How to talk to healthcare providers about Long COVID - Long COVID Justice • HIV may increase the risk of Long Covid. Why aren’t major advocacy groups addressing it? - The Sick Times • Senate hearing highlights Long Covid crisis — but not Covid-19 prevention — while advocacy groups bring their demands to DC - The Sick Times • Long COVID in trans people - Long COVID Justice • Press Release on US Senate's Long COVID hearing 1/19/24 • Save HIV Funding - Save lives. Save costs. • Masking At BKABF • Bulk Buy: Flu Covid Rapid Test Wholesale- Enterprise & Organizations – iHealth Labs Inc • So Very Virtual - Justin Clarel • QSH COVID-19 Protocols - SONG • Pandemic Solidarity for the Long Future - March 8-10 • Long COVID Treatment Guide | RTHM • COVID-19 Is Still a Major Health Concern. Why Are Some HIV Organizations Acting Like It Isn’t? • STILL MASKING - Free download - Sheyam Ghieth Art • Resources: HIV & Long COVID • Listening for the Long Haul • Long COVID is a Trans Issue: webinar recording + resources • Join our list- LONG COVID JUSTICE • Long COVID Essentials – 30+ Resource Sheets! • ICE Makes Me Sick—Fund Healthcare, Not Violence! - Action Network • Take Action for a People's Vaccine - global vaccine access now! • Supplements & over-the-counter treatments that may help with Long COVID • Tool for calling your reps to stop funding genocide, with script (U.S.) • Using existing medications off-label for Long COVID - Long COVID Justice • CRIP CALL TO ACTION: Why disabled people living in the US need to be calling for a long lasting ceasefire in Israel-Palestine • Tell CDC + your state's officials not to shorten COVID isolation guidelines - Pan End It! • Stop Mask Bans • Join Us / Sign Up ~ Long COVID Justice • Disability Project - Transgender Law Center • 10 Principles of Disability Justice — Sins Invalid • The COVID-19 pandemic has left millions disabled, including many of us with HIV—It’s time to fight for disability justice. - Gabriel San Emeterio in The Amsterdam News • Direct action resource list - Long COVID Justice • Still On the Margins: Long COVID Patients of Color • Help sustain Long COVID Justice in 2026! • Keep Masks in Healthcare - Toolkit! • Arundhati Roy: “The Pandemic Is a Portal” - YES! Magazine Solutions Journalism • Resources! Long COVID + HIV, in trans communities, prevention, info to give your doctor, webinars, & more! • The Pandemic Has Been a Portal (for a few of us) • 'Brilliant at survival' — Long Covid afflicts trans and bi patients at highest rates - ClearHealthCosts • Pandemics Are Chronic - Long COVID Justice • so very virtual | Justin Clarel | Substack • We need Medicaid! - Long COVID Justice • #MillionsMissing 2024: Teach ME, Treat ME • Fatigue Can Shatter A Person_Ed Yong for The Atlantic_July 2023.pdf - Google Drive • HIV & Long COVID – Long COVID Justice • STOP REST PACE | #MEAction • Women of color face additional hurdles with long Covid • In communities of color, long-covid patients are tired of being sick and neglected • Alice Wong Interview - With subtitles.mp4 - Google Drive • Bateman-Horne Center • Tracking your symptoms - Long COVID Justice • The Short Reach of Long COVID Care — palabra. • AMMES Financial Crisis Fund – American ME and CFS Society • Support Groups – Resource List by Long COVID Justice • How to Get On - Self-advocacy guides for social security, housing, home aides, finances, & more • Phonebanking Against Mask Bans - WHN • Getting Long COVID care when you are living with HIV - Long COVID Justice • Mask Bans Are an Insult to Disabled People and Protesters Alike • Comparing the COVID-19 Vaccines: How Are They Different? • Get connected – Long COVID Justice • Listening for the Long Haul – Long COVID Justice • New Allergies or Food Intolerance After COVID-19? Mast Cell and Histamine Issues – Long COVID Justice • Disability Justice - readings & resources • What is happening with gender-affirming care, Medicaid, and other health insurance? - Autistic Self Advocacy Network • Democracy Now! covers Medicaid • Accessible Virtual Pride 2025 - Calling Up Justice! • COVID Safer Event Planning Tips & Protocols – Long COVID Justice • These are the drag artists and organizers fighting to make queer spaces more COVID safe - The Sick Times • Printable Covid is a DRAG Zine PDF - AirgasmicLA's Ko-fi Shop • Zines & more - Steel Transplants • am creations - @uhhhlece • New Yorkers need stronger paid medical leave - contact reps! via A Better Balance • COVID is a Labor Issue - Free zine download! • Medicaid is Under Attack! Tell Your Elected Officials “Hands Off Our Medicaid!” - DREDF • Medicaid Defense Hub - AAPD • Direct action resource guide – Long COVID Justice • Dealing with severe ME after COVID-19 • What is ME? – Long COVID Essentials • Still feel unwell after COVID-19? Here’s what you need to know about Long COVID! • Contact your reps - No Long COVID cuts! • Black Long Covid Communities are Black History. • Nearly 100 organizations demand NY lawmakers reject a state mask ban (press release) • Volunteer/Member Interest Form • Make a gift to Long COVID Justice! • Resources + Toolkits – Long COVID Justice • Avoid ableist language – Resources • Resist mask bans – resource list - Long COVID Justice • #ME Action- Stop.Rest.Pace and much more • We can't talk about Long COVID without talking about ME/CFS • U.S. ME/CFS Clinician Coalition • Disability Justice & Direct Action: register here! • Palestine + Disability Resources • Pandemic Apathy Allows Genocide: • Test to Treat Program Saves Lives. Let’s fight for it. • Pandemics Are Chronic - read and endorse our pledge here! • Community Care Clinic for Disabled and Chronically Ill Movement Folks • Direct Action Toolkit – Long COVID Justice • Peoples CDC 3/14 Press Conference- Put People Over Profit! • NY- Tell Your Reps: Support Strong Paid Medical Leave for New Yorkers! • Commit to Long COVID Justice: Sign-On Pledge • Practicing Inclusion in the Time of COVID — Strategies for High Impact (S4HI) • Support for people living with LCAD, ME/CFS & their supporters • High-risk patients alarmed by CDC’s plan to ease covid isolation guidance - Washington Post • Keep COVID isolation - People's CDC press release 2/15/24 • Disability Justice - Patty Berne | Sins Invalid • Why Palestinian Liberation Is Disability Justice • VIDEO + PDFs- Senate Hearing on Long COVID • Angela M. Vázquez - Video Testimony at Senate hearing • You Are Not Entitled To Our Deaths: COVID, Abled Supremacy & Interdependence - Mia Mingus • Dr. Sami Schalk • Trust Yourself & Take Care of Each Other: Navigating COVID & Long-COVID as HIV Long-term Survivors • Reporting on Long Covid Taught Me to Be a Better Journalist - Ed Yong • Long COVID - Household Pulse Survey data • Letter to Biden re 2024 budget- with links to add your name & read Sick Times coverage • Urge NYC Leaders to Provide Free N95 Masks • Urge the White House and Congress to Provide Free N95 Masks! • Public Health Now. Stop Bombing Gaza. | People's CDC • "I hope I will..." Share one thing you hope to do again • Crip Bits — Sins Invalid chats on discuss disability and sexuality, art, activism • Resources page ~ Long COVID Justice • Workplace Masking Policies - share your example! • Guide to Masks • Approving Workplace Accommodations for Patients with Long Covid — Advice for Clinicians | NEJM • Keep up the pressure on the NIH ! • Ed Yong - Fatigue Can Shatter A Person [PDF] • Ed Yong - Fatigue Can Shatter A Person_01.wav [AUDIO] • Off-Label Meds: Promising Long COVID Treatments? • Pacing and Management Guides • Write your Senator: We need S.1489's Covid Task Force • Statement on Covid Task Force from Long COVID & ME orgs • LONG COVID MEMORIAL at Naming The Lost ceremony, 2023 • Tell your Reps to support the TREAT Long COVID Act! • Learn more about Direct Action with Long COVID Justice • COVID Long Haulers Protest in DC: "Pandemics Are Chronic" • COVID reinfections survey - open to all • "Long Covid is Being Erased - Again" Ed Yong article from The Atlantic • The Long Covid Revolution • NAMING THE LOST Memorials - Learn more! • Sign NIH petition, read NIH response, spread the word! • Long COVID exercise trials proposed by NIH raise alarm • Webinars – Long COVID Justice • Sign our letter - Tell WashPo to stop spreading misinformation about COVID! • Message your governor to #SaveMedicaid! • Sign our petition: Tell the White House COVID Response Coordinator to tell the truth about Long COVID! • Sign our petition: NIH must stop Long COVID trials on debunked, damaging therapies and fund strategic therapeutic research. • Follow us on Twitter @LongCovidNetwk • Mayor Adams wants people to remove masks when entering NYC businesses in push to reduce thefts • Order the Long COVID Survival Guide • Resourcing the HIV Community report.pdf • As Queer Spaces Return to “Normal,” Disabled LGBTQ+ People Are Being Left Behind • People with Long COVID Are at Higher Risk of Early Death and Disease • The Future of Long COVID • 'I felt powerless': Black Americans suffering from long COVID say they have trouble accessing care • What Medicine Keeps Getting Wrong About Long COVID—and How to Fix It